Back under the knife...

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Stevo68
Regular Member


Date Joined Jun 2011
Total Posts : 50
   Posted 11/3/2017 12:10 PM (GMT -7)   
Third time in as many months. Last was an abscess drain and horseshoe seton placement. Still had pain weeks after surgery. MRI taken. The results - the abscess, despite significant daily drainage, isn't shrinking much AND I have another area which is collecting pus. Doc is going to drain the primary abscess, drain the "new" abscess, and place a seton if necessary. My arse is going to look like a patchwork quilt.

My Crohn's is quite active right now. Anyone have any thoughts on how to calm it down while all this is going on? Maybe like intravenous antibiotics?

scifigal2k
Veteran Member


Date Joined May 2012
Total Posts : 3294
   Posted 11/3/2017 1:35 PM (GMT -7)   
What Crohn's meds are you on right now? You are definitely not in remission at all.
"For this thing I besought the Lord thrice that it depart from me. He said, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities; I take pleasure in infirmities, reproaches, necessities, persecutions, distresses, for when I am weak, then am I strong" 2 Cor

Stevo68
Regular Member


Date Joined Jun 2011
Total Posts : 50
   Posted 11/4/2017 12:02 PM (GMT -7)   
I'm only on Pentasa. I've been on it alone for 10+ years and have been on Prednisone twice for maybe a week or two for two flares that calmed right down. My primary symptom over that time was quarterly stomach pain that lasted a day or two tops. I've been lucky, up until this year.

scifigal2k
Veteran Member


Date Joined May 2012
Total Posts : 3294
   Posted 11/4/2017 12:31 PM (GMT -7)   
You definitely need to get on a biologic, then. Remicade is best for abscesses and fistulae. They should have switched you over as soon as you started this.
"For this thing I besought the Lord thrice that it depart from me. He said, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities; I take pleasure in infirmities, reproaches, necessities, persecutions, distresses, for when I am weak, then am I strong" 2 Cor

Stevo68
Regular Member


Date Joined Jun 2011
Total Posts : 50
   Posted 11/4/2017 12:40 PM (GMT -7)   
The progression of my current problem is laughable if it wasn't so sad. That's why I'm not on anything. Started having ass pain in April of this year. Finally got intolerable. Went to my gastro who sent me to get an MRI. MRI showed NOTHING. Referred to a colo-rectal doc who said I had proctitis. Pain was EXCRUTIATING. Went in for exploratory surgery which basically found nothing. Still in pain, barely managing on antibiotics, pain pills, enemas, creams, suppositories. Finally, one day I called my doc and basically read him the riot act for not helping me. Another MRI revealed a large abscess and fistula. Immediate surgery for drainage and seton placement. Got relief for a week. Then it hurt again. Developed a fissure. Put on a cream for that. That finally healed. Still in pain. MRI. Another abscess and the original abscess was still quite large despite a ridiculous amount of drainage through the seton. Back under the knife yesterday for more drainage and the re-seat the seton.

Once/if I heal, I will go on Remicade or Humira. I just have not wanted to be on them, but it's clear to me that I now need to be on something serious to try to knock this out. 8 months of constant pain is no fun.

Labradorite
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Date Joined Sep 2009
Total Posts : 980
   Posted 11/4/2017 2:46 PM (GMT -7)   
sorry you are going through all of this. the remicade or humira should help it heal. Its really worth trying. I battled a fistula for years and then took humira and it healed it rather rapidly.

scifigal2k
Veteran Member


Date Joined May 2012
Total Posts : 3294
   Posted 11/4/2017 4:07 PM (GMT -7)   
I think you need to start them NOW as opposed to waiting until you heal. You honestly may not heal without them.
"For this thing I besought the Lord thrice that it depart from me. He said, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities; I take pleasure in infirmities, reproaches, necessities, persecutions, distresses, for when I am weak, then am I strong" 2 Cor

Stevo68
Regular Member


Date Joined Jun 2011
Total Posts : 50
   Posted 11/5/2017 8:10 AM (GMT -7)   
That's interesting. I see a new gastro-doc this week. I was under the impression that because I'm abscessing and draining, being on a biologic is not a good idea right now because it will reduce my ability to fight infection. I mean, I've got some open wounds right now too, but am I wrong about that?

If my gastro recommends it, I'm on them, that's for sure. I can't do this anymore, frankly.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15150
   Posted 11/5/2017 8:21 AM (GMT -7)   
Stevo, I agree with scifi you need something now to get this to heal. And yes you can start the meds now. People tend to think these meds will lower their immune system, sure it is possible but it does not happen to every patient on them. This is the pharmaceutical covering their arses when the meds were in the trial phase. Key words, this may lower your immune system. While on both of these meds I had no issues, I did not get colds or get infections, in fact I had fewer. Did I do anything different to prevent anything happening, no, not at all.

Good luck with your new dr.
Susie
Moderator in Chronic Pain & Psoriasis Forums

scifigal2k
Veteran Member


Date Joined May 2012
Total Posts : 3294
   Posted 11/5/2017 9:49 AM (GMT -7)   
Normally with an infection (like the flu or something) then you would wait a week or something. But with abscesses and stuff, it's the Crohn's itself that is causing the problem. Get rid of that, and then you'll be able to use antibiotics to help fight off those infections.

I've had two c-sections, and both times I had Remicade a day or two after. I've gotten them with colds and stuff.
"For this thing I besought the Lord thrice that it depart from me. He said, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities; I take pleasure in infirmities, reproaches, necessities, persecutions, distresses, for when I am weak, then am I strong" 2 Cor

Stevo68
Regular Member


Date Joined Jun 2011
Total Posts : 50
   Posted 11/10/2017 9:21 AM (GMT -7)   
So, I have spoken to both my colo-rectal surgeon and my gastro and while both said that a biologic is appropriate, they won't put me on one until I heal. They essentially said, "we can't heal you until you heal". Brilliant. I thought this was going to be the case. I've asked them if there was anything I could do to speed the process and I got crickets. Anyone have any ideas?

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15150
   Posted 11/10/2017 10:37 AM (GMT -7)   
I sure do have another idea, get a second opinion with another gi. I am not trying to bash your drs but you need someone that knows about crohns issues & how to treat. Scifi nailed it in her post, so no point in me using up space to repeat what she said.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums
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