Concerned about my medication what can it be ?

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Raffi
Regular Member


Date Joined Jul 2017
Total Posts : 36
   Posted 11/5/2017 3:23 PM (GMT -7)   
Hey guys Raffi again, I’m starting to worry and my doctor is not being helpful.

I am going to remind you with my situation, I was diagnosed on the 3rd month with Crohn’s one ulcer found in the ileum.

My stool was not diarrhea 98% of the time, sometimes loose sometimes not well shaped, sometimes normal.

My main issue was spasms. (Gasy drinks, milk, Alcohol made it worse)

I took steroids for about 3 month occasionally took antispasm meds.
I didn’t feel better.
Then they put me on Aza from 18th of the 6th month until now 50mg twice a day.
I still don’t feel any better.

I have been doing blood tests regularly normal as hell always.

I recently did a stool test.

The results were clear as a normal person. No blood, No mucus, No fungi, No nothing.

What is wrong ?, could it be something else and it’s not Crohn’s? Could it be the meds are not working? What on earth I can do to feel better ?

The only medicine that made feel as a normal person was Paracetamol and it sucks because I don’t want to be addicted to this med or any.

It is really frustrating as I’m planning to leave my country soon and just waiting for my visa.

Post Edited (Raffi) : 11/5/2017 3:30:59 PM (GMT-7)


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4365
   Posted 11/5/2017 3:54 PM (GMT -7)   
Am I understanding your post correctly? Are you saying that 98% of the time you have normal stools.?."My stool was not diarrhea 98% of the time"
And that you get gassy and spasms from milk and alcohol?

That doesn't sound so bad, unless I'm not understanding or missing something?? If that is the case, then you might have irritable bowel syndrome or food intolerances. Stop alcohol, milk and other foods that make you feel gassy and then you might feel better.

IBS is very common. Maybe they are over-treating your mild Crohn's and your symptoms are not from Crohn's but IBS

Raffi
Regular Member


Date Joined Jul 2017
Total Posts : 36
   Posted 11/5/2017 4:01 PM (GMT -7)   
Yes you are getting it well mate.

Does IBS cause continuous spasms? I’m confused because most of the time I feel spasms around the belly button.

But when I push the area with my hand It doesn’t hurt and to mention one more thing spasms don’t go away it is just pain in the as*

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4365
   Posted 11/5/2017 5:11 PM (GMT -7)   
I don't know that Crohn's necessarily causes a lot of spasms. I have Crohn's that I believe is in remission, but I have miserable IBS that I struggle with daily. Has your doc ever prescribed Bentyl? It might help the spasms. It doesn't cure anything, but it can help with symptoms. You can go to the following link and read about it:

https://www.medicinenet.com/dicyclomine-oral/article.htm
58 yr. old female, diagnosed with Crohn's in terminal ileum Sept-Oct. 2007. Dx. with c.difficile 1/12, 10/14, 11/15, 1/16. Fecal transplant on 2/24/16, and so far, no more c.diff!

5/20/14: Ileo-colic resection surgery after stricturing and partial bowel obstruction.
Not currently on any Crohn's meds and in remission, but struggling with bad IBS.

Raffi
Regular Member


Date Joined Jul 2017
Total Posts : 36
   Posted 11/5/2017 5:53 PM (GMT -7)   
Okay thanks for the info, hope you do better in the future :D
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