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TommyG
New Member


Date Joined Nov 2017
Total Posts : 2
   Posted 11/6/2017 7:58 AM (GMT -7)   
I am new to Crohns and I having a hard time understanding what is going on. What I really don't understand is how do I know I have a flare? How do I know when it's gone? GI put me on Mesalamine Tablets and I have no clue if it's working. I had chicken broth yesterday and have 5 BM from it. So therefore I am scared to eat and I have lost 30 lbs in 30 days. Any help would be great

Thanks in advance
Tommy

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10021
   Posted 11/6/2017 10:04 AM (GMT -7)   
You sound like you're in a flare-up if you're too scared to eat and have lost 30lb in a month. Go back to your GI and tell him the mesalamine isn't working. If he tries to give you a different brand of mesalamine, I would think about switching doctors, as new as you are to Crohn's. Mesalamine is almost useless in Crohn's and it shouldn't really be prescribed on its own, except for perhaps very mild disease. Were you given anything else, like a course of steroids?
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15177
   Posted 11/6/2017 10:24 AM (GMT -7)   
Hi Tommy, the above poster is right, that type of weight loss is not good, call the dr today. How long ago were you diagnosed? You need to obtain a copy of your biopsy report from your drs office. All you have to do is call the drs office & tell them you would like to pick up a copy, you are entitled to a copy of your records.

Being new you need to learn & educate yourself about the disease. The better educated you are about crohns it will help you understand it more. You cannot rely on a dr to tell you everything either. A good website is CCF.org, reputable info there. You have to be careful reading on the web because there is a bunch of garbage out there that is simply not true. Come here & ask questions but again, educate yourself.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

scifigal2k
Veteran Member


Date Joined May 2012
Total Posts : 3298
   Posted 11/6/2017 12:31 PM (GMT -7)   
You are definitely in a flare, and your doctor is irresponsible for having you on mesalamine when symptoms are like this. Mesalamine is not really much more effective than a placebo in the majority of Crohn's cases.
"For this thing I besought the Lord thrice that it depart from me. He said, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities; I take pleasure in infirmities, reproaches, necessities, persecutions, distresses, for when I am weak, then am I strong" 2 Cor

TommyG
New Member


Date Joined Nov 2017
Total Posts : 2
   Posted 11/8/2017 9:27 AM (GMT -7)   
Thanks guys! I called him and told him it's not working and he gave me Uceris. I have been on for 3 days and I have noticed my number of BM's have decreased, however when I do have one its huge. I have another appt this Friday for a second opinion. You are all right, he was very non engaging and just seemed like he wanted to move on to the next patient. It's very sad.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15177
   Posted 11/8/2017 11:09 AM (GMT -7)   
Tommy, it is not uncommon to have to see more than one gi dr. I went through 5 before finding one that worked for me. Nothing wrong with advocating for good care. If number 2 doesn't work, move on to the next one.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums
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