Just wanting to rant

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Gutsycal
New Member


Date Joined Oct 2017
Total Posts : 8
   Posted 11/7/2017 2:49 PM (GMT -7)   
Hey guys,

So for the last 5ish years I've been in remission, occasional flare up days but nothing crazy. Well the last four weeks have been awful for me. sad lots of abdominal pain that will come in waves and take my breath away , sometimes causing me to throw up. No fun. about a week ago I started developing quite intense rectal pain that did go away and now is back making it not fun to walk, sit or really move. I've also gone from having a solid BM every couple of days (was my normal to go for a few days without BMs) and now I'm having D up to 6 times a day and bad urgency, almost causing me to have accidents. Thankfully I have a GI appointment on Friday, and actually am excited because hopefully it will give me relief. The hard part is I'm on my last semester of my undergrad in nursing, I have 10 shifts left of clinical, and well that doesn't sound like a lot I'm so nervous about it because I can barely get off my couch lately. A month from now I'll be done and I won't have to worry about it it's just frustrating that it's interfering with my schooling sad I know I'm not as bad as some I just felt like ranting. Hope I can get it under control!
Thanks in advance for listening.

73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1759
   Posted 11/7/2017 7:07 PM (GMT -7)   
Have you had a formal diagnosis for Crohn's? Have you been on any meds? It sounds like you've enjoyed a fairly long remission, but are now coming out of it. You really need to address this before too much damage is done. In the meantime, you should maybe stick with a low residue diet. This might help calm things dow until you can get on something. Your GI will probably recommend Prednisone as it works extremely fast to get things under control, before transitioning to a maintenance plan. Hope you're feeling better soon, and are able to get through school.

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1823
   Posted 11/8/2017 6:53 AM (GMT -7)   
I second what Monte said. Call your GI and let them know what is going on . The down side to that is they are probably going to want to schedule a scope which will probably interfere with your class and clinical schedule. Unless you can talk them into waiting until you finish up you clinical shifts.

Good luck and congrats on making it this far. This DD doesn't make it easy for us to do the things we need to.
DX with CD Aug. 1982
Gerd secondary to crohns
Entyvio
Methotrexate
Monthly b-12 injections
40 mg Protonix / twice daily
Zoloft
xanax
folic acid

Gutsycal
New Member


Date Joined Oct 2017
Total Posts : 8
   Posted 11/8/2017 8:02 AM (GMT -7)   
Thanks guys. I was diagnosed in 2011, and have been taking humira and methotrexate. I'll try watching my diet, I'm usually pretty good at avoiding most fiber foods. Ya I'm worried about when the scope will be, but hopefully I can try to schedule it around my shifts. Thanks again guys!

73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1759
   Posted 11/8/2017 5:11 PM (GMT -7)   
Sounds like Humira has been very effective for you. Not sure why it wouldn't still be working. It could very well be something other type of digestive issue. Might be gastroenteritis or something similar. Wouldn't want to see you discontinue Humira if it's still working for you. The scopes will tell the story. Should get a full blood screening done as well. Maybe even get tested for antibodies to Humira just in case.

scifigal2k
Veteran Member


Date Joined May 2012
Total Posts : 3294
   Posted 11/8/2017 6:03 PM (GMT -7)   
Before you jump into scopes, make sure you do a stool sample to rule out salmonella, giardia, c. diff., etc.
"For this thing I besought the Lord thrice that it depart from me. He said, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities; I take pleasure in infirmities, reproaches, necessities, persecutions, distresses, for when I am weak, then am I strong" 2 Cor

Gutsycal
New Member


Date Joined Oct 2017
Total Posts : 8
   Posted 11/9/2017 3:47 AM (GMT -7)   
Alright, will do. I'm hoping I can stay on the humira as it has been working so well for so long. But definitely will have to see what's causing the pain and loose BMs. Thankfully I will go in tomorrow, been waiting for this appointment for what feels like forever!
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