Hello AmorDragonfly, I, too, am a new member. I, too, am experiencing a lot of bloating lately. My heart goes out to you. It's horrible.
At the moment I am about
to go on Dr Gundry's Lectin Free Diet, from his book, The Plant Paradox. I got a Kindle version of it from Amazon, and am about
to re-read it, and start it. The information is fascinating. He lists an example of healing someone, curing? them of Crohn's disease in his book. His diet covers all sorts of antinflammatory conditions. He speaks of how lectins in plants, are their self defense mechanism, to put off insects, animals AND humans from eating them. This can play havoc with some people's digestions.
I have had Crohn's since I was 27. I'm 54 now. I have got away with not being on any meds for most of that time, and just got used to a very runny tummy. I would have a bad flare here and there, but after about
2 years on the Imuran / azathioprine, I would go off it, because it made feel sick with everything going around, fatigued and sore joints, I preferred to take my chances with the fast tummy.
But over the past 2 years the crohn's has been unsettled, and I saw a GI just in time to have a flare up and be put back on meds. I had a colonoscopy after 19 years of avoiding them, and apart from typical crohn's inflammation, all is clear. Phew.
The GI recommended the Imuran and I said, oh, I don't like that drug. I asked, what happens if I don't take it? He said I risk the nerves in my colon dying off. I'd never heard that before.... I went into a flare, and needed the prednisone and decided to start the Imuran again as well.
But since starting the drugs, I am having this HORRID bloating you speak of and struggle with. I've never had that from prednisone before. But it's been a long time since I was on high doses of it.
I have gone from a fast digestion to a very slow, bloated, distended, constipated one. Of course I am wondering in the back of my mind.....have I actually killed off those nerves in my colon, already? argh! I don't see my new GI till March. I am hoping it all resolves itself by then.
I did a liquid diet for a day or two....and that helped! But, it's tricky since I need to eat to take my meds, to coat my stomach. I am using a lot of Movicol and some Senokot. Seems I can only eat small amounts or suffer. Today is a bad day and I am feeling like going back on the liquid diet. Replacing a meal with Ensure..... Having a banana smoothie....
That is another issue. I seem to be low in potassium. Cramps! Cramps in my feet and legs. I know my magnesium, salt, water and calcium is ok. So I had to start eating Bananas, avacadoes, and any potassium rich foods.
I'm all prednisoned out right now. Sleep deprived. Exhausted. Moonface. Gained weight. Feel even bigger with this bloated uncomfortable stomach. I had some raw carrot one day and that really made me feel uncomfortable. So I am automatically avoiding raw veggies. But....with constipation...I need the fibre. I tried fibre powder, but it seemed to make things worse. I'm so foggy headed I can't figure it all out right now. lol.
When I wean off the pred at the end of January, I plan to do Dr Gundry's Lectin free diet, start walking every day, lose this weight and get my life back, lol. I would highly recommend you read his book. 'The Plant Paradox'. You can also find videos of him being interviewed on youtube.
I notice your post is November 2017. How are you going nowadays?
Crohn's Disease since 27 with chronic fatigue and diarrhea
Current meds: Imuran and Prednisone
Last Abdominal CT scan revealed a complex cyst on left Kidney
Post Edited (Melody16) : 1/7/2018 3:13:17 AM (GMT-7)