hey my people. just met my new GI dr. seems my blood level of humira is dropping. so he wants me to go to 2 injections at the same time each week. anyone else go to 8 per month? just wondering. if the level comes up in 2-3 months, may stay on. but if it does not , why bother so we will see.
an update on the Gattex . has been 2.5 years now and have been able to go from 2 liters of TPN 7 days per week, down to 1 liter 3 times per week. and now going down to 2 times per week. will still need saline and potassium for hydration on the other days but it is ashorter time hooked up.
also this xmas i will finish my 18th year on TPN. a milestone of sorts. kind of like being a TPN adult!