Happy belated birthday, gumby >_>
I completely understand where you are coming from and it is miserable. People who never have to think about
how food affects them really don't get it. I used to be more willing to live with the consequences than I am now, but that's partly because the consequences seem to go on for longer than they used to. I can live with two bad hours, but two bad days is overkill. Oddly enough, I did better when food went through me faster than it does now.
If I do go out for a meal, then I find eating lightly the day before and making sure my bowels are calm and empty helps. As does taking pre-emptive paracetamol and codeine. (Paracetamol on its own is useless.) But that's only helpful for a one-off meal unfortunately, not day after day.
Think everyone here understands the bathroom anxieties as well :-/
Dx Crohn's in June 2000. (Yay )
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)