Hi scifi--gyp recommended Dr. Thiru Lakshman in Houston. I have to email him and then figure out all the logistics....especially how I'm ever going to afford any treatment in the Us.
I'm very upset and tearful. Had a breakdown this morning. Was up all night with air passing through and now I'm having urine leakage
I don't know why I'm not listened too. I've told several docs that the peri anal fisutlas need to be repaired because it's affecting my lady bits. They don't care; just say they refuse to fix them because it won't work due to crohns. Now look at me??? I'm in swollen agony and now have a bladder fistula.
How is it possible that I would have all 3 fisulas??? They have to repair the bladder one, right?
These UTI's have been going on since November....is it possible that a UTI is causing air/urine and I don't have a fistula? I get the results of MRI on Thurs.
I don't know what to do in the mean time. I feel gross and can't take anymore of these fistulas. Especially when bowel is fantastic.
I managed a long walk in the snow yesterday with my dog without any bowel worry. Now it seems I'm worried about
peeing myself....Yay. More pads. I've been able to distract myself and keep going but today I just want to curl up in a ball and cry.
UC/Crohns - tested positive for MAP antibodies & mycobacterium
chronic perianal abscess and fistulas. RVF. Failed setons...it was pure torture.
started Stelara May 24, 2017. 150mg imuran
Doing extremely well on Stelara!
IVIG on occasion.