So glad the Stelara has given you some quality of life, but of course I hate to see you struggling with the fiztulas. I was supposed to see IBD Specialist before Christmas but changed my appointment to mid-January. Screw it, I will message her on the patient portal and ask who she'd recommend for you. XO
I messaged my IBD Specialist and she said "Your friend sounds complicated. Her best options are Mayo Clinic or Cleveland Clinic". Did you speak to Cleveland Clinic yet?
37yr female, dx UC '04, dx changed Crohn's Colitis '17
Currently: Total Colectomy Oct. 2017!
Previously used: Remicade, Humira, Stelara, Imuran, 6MP, Apriso, Asacol, Lialda, Delzicol, Pentasa, Cortenema, Cortifoam, Rowasa, Canasa, Entocort, Uceris, Uceris foam, Prednisone
I'm Gluten-free. Supps: VSL#3, Cal/Mag, Vit D, Krill oil, EZFE
Post Edited (Plucky) : 1/3/2018 7:29:59 PM (GMT-7)