I am so sorry you're feeling discouraged. I agree with the others, firstly, congratulations!!!! but, like straydog said, it is totally unpredictable. People like to think they've figured it out, and the moment you do, that is the moment it goes against you even though you're doing everything under the sun to stop it. I used to think it was food, or stress, but elimination of these things ultimately didn't stop the progression for me. I tried to be more physical, take care of myself, eat like a rabbit, relax more, not work, not have financial or personal obligations, cut toxic people out of my life... still no improvement.
When was your last infusion? Was there improvement immediately following? I was a non-responder to biologics, I never got a moment of relief, but if you have had a reduction in symptoms, there is hope for adding meds, or adjusting schedule/dose. Have you had stool tests?
We all have ups and downs. It was always really hard for me to stay calm and wait it out. That was the biggest challenge for me living with IBD. Things will get better.
Moderator: UCCurrently: no meds 6/15 Step 1 J-pouch Surgery Complete 9/15 Step 2 Complete 11/15 Step 3 Complete
From Sickly to UC Free
Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish