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Perianal abscess --> fistula?

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Crohn's Disease
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Perianal abscess --> fistula?  
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ohmydearnyc
New Member
Joined : Jan 2018
Posts : 1
Posted 1/24/2018 8:35 AM (GMT -7)
On December 2, 2017 I went to the ER with incredible pain in my rectal area which, long story short, turned out to be a perianal abscess. I have been dealing with an incredible amount stress -- my father had been admitted to hospice the week prior and I have been his caregiver. At the end of December, he passed away.

On December 3, I had an I&D and was sent home to recover on Flagyl & Cipro for 10 days. I ended up with pneumonia presumably from the general anesthesia and was on another antibiotic for 10 days. I was told not to bathe for the healing period, no sitz bath, nothing. I keep the area clean with a perianal squirt bottle and gauze. (I don't have a Crohn's diagnosis but wasn't sure where else to post this.)

I was examined at six weeks out and it looked healed however another two weeks later, a pinhole seemed to appear with pus and blood coming from it. I went back to the original surgeon again today who says there is a "20% chance" of a fistula forming -- which he said when I had been admitted -- but the internet says 50% chance. This is a good emergency room and seemingly good doctor. Not sure why his odds don't match up with my internet researching. In any case, he told me to come back in 4-6 weeks if it is still draining to schedule an OR visit to check for a fistula.

Stats from 12/3/17 on the abscess:

Small 2.1 x 1.6 x 1.8 cm abscess in the medial left gluteal fold. No definite extension to the adjacent sphincter muscles identified. No linear tract visualized to suggest fistula formation. No acute intra-abdominal abnormality.

MY QUESTIONS:

Here are the stats on the surgery. Would you get a second opinion NOW or wait 4-6 weeks?

Is it normal to still be healing this long out after an abscess?

What are the chances a fistula DID form?

Thank you!
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Dimitri71
Regular Member
Joined : Jul 2017
Posts : 170
Posted 1/25/2018 1:27 AM (GMT -7)
Hi ohmydearnyc, sorry to hear about your troubles.
I hope it is not a fistula.
My personal take on this is that if it is a fistula you'd better search for the best CRS there is. Also the earlier you find him/her the better it is.
So I would look to find a good CRS for the long run, just in case.
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seattle94
New Member
Joined : Jan 2018
Posts : 2
Posted 1/28/2018 7:22 PM (GMT -7)
ohmydearnyc,

It's been a few days since you posted. I hope you are feeling a bit better.

I am so sorry for all you have been through, especially the loss of your father. I know the panic that comes with the diagnosis of a perianal abscess. I had one about 8 years ago and it was brutal. I don't want to give you false hope, but just some hope. Mine turned out NOT to be a fistula and I DO have Crohn's. I had it drained (the most painful experience in the world) and then took antibiotics and kept it really clean. Thankfully it has never returned.
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Plucky
Regular Member
Joined : Jun 2013
Posts : 383
Posted 1/29/2018 4:22 AM (GMT -7)
Well if you are in NYC as your name suggests, then you should consider seeing a GI and CRS at Mt. Sinai--they are the best.

It does sound likely that you have a fistula.

I am sorry to tell you that fistulas do not heal well and some never heal--I tell you this because I personally thought it would be a quick fix. But no. This is often a chronic condition.

I have a perianal fistula that was very small to begin with (didn't appear on MRI). I kept it from abscessing again by taking a daily sitz bath in epsom salts and a few drops of tea tree oil--some people take sitz baths multiple times per day but once worked for me. I would suggest taking sitz baths as they really help.

And then yes, see someone ASAP because you don't want to end up in the ER again--the ER is not specialized in abscesses and fistulas. You need a colorectal surgeon (CRS) to look at you.
37yr female, dx UC '04, dx changed Crohn's Colitis '17
Currently: Total Colectomy Oct. 2017!
Previously used: Remicade, Humira, Stelara, Imuran, 6MP, Apriso, Asacol, Lialda, Delzicol, Pentasa, Cortenema, Cortifoam, Rowasa, Canasa, Entocort, Uceris, Uceris foam, Prednisone
I'm Gluten-free. Supps: VSL#3, Cal/Mag, Vit D, Krill oil, EZFE
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