Crohn's is starting to cause me problems at work. Is this rectal stenosis?

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minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 2794
   Posted 2/2/2018 4:07 AM (GMT -7)   
My last flare up that started more than 3 weeks ago made me go on a medical leave and that was not that welcomed at work. People cannot understand what's Crohn's. Nobody knows anything about the unpredictable nature of it. I have to do admin work in addition to my teaching load. During my absence, my intimate friend was asked to do it on my behalf and she's already overburdened. This is affecting our friendship that has lasted for many years but I'm not up to it now to return to work.

Cramps and vomiting are not the problem. The problem is this rectal problem I've got. I get this sudden anal/rectal spasm that is immediately followed by vomiting/nausea and a severe headache. In less than an hour, the headache will be like that of migraine and I start screaming. It happens anytime whether I'm at work, attending a party or onboard a plane. It is not related to my psychological state whether happy, angry or sad. This used to happen every 3 or 4 months. Lately, it happened 4 or 5 times/month. In the last week, it has been happening every day. I apply pentasa suppositories and colifoam but I don't think they are much of a help. Many years ago, the CRS told me I have a rectal stricture and when I told my GI he said you're not going to undergo any kind of dilation. I don't know what's this. Is it a problem of a spasmed muscle or a rectal stricture most probably fibrosis? It's starting to affect both the quality of my life and my work adversely. What do you recommend I should do?
GERD, perianal fistula, CD, IBS, persistent mouth ulcers & fissures
___________________
Meds: Remicade, Cortiment, Nexium, Imuran, colifoam, monthly B12 inj.
Pred 40 mg from Oct. 2010 till Jan. 2012
Previous: Mesalamine tablets & supp.
Failed:Azathioprine (generic), Methotrexate

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10214
   Posted 2/2/2018 5:43 AM (GMT -7)   
Well, the only way to find out if you have a rectal stricture is to get your rectum examined. Can you go back to the CRS, either the same one or a different one? I do know that there are some people with j-pouches who develop stenosis shortly after surgery and have to have their j-pouches dilated. It seems to work for them. I don't know why your GI would be against dilation, that doesn't make sense to me. But then again, you don't have to listen to him - it would be a job for the surgeon, not your GI.
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 2794
   Posted 2/2/2018 7:19 AM (GMT -7)   
NCOT, thank you. Yes, I'm intending to see a CRS soon.
GERD, perianal fistula, CD, IBS, persistent mouth ulcers & fissures
___________________
Meds: Remicade, Cortiment, Nexium, Imuran, colifoam, monthly B12 inj.
Pred 40 mg from Oct. 2010 till Jan. 2012
Previous: Mesalamine tablets & supp.
Failed:Azathioprine (generic), Methotrexate

Post Edited (minnietoty) : 2/2/2018 7:45:53 AM (GMT-7)


NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10214
   Posted 2/2/2018 8:02 AM (GMT -7)   
Okay, that's good. I really hope the CRS can help.
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)
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