Hi Memmem good to hear from you!!!
As I understand you currently have a draining seton which has more or less eradicated the main fistula? No need for a VAAFT anymore? That's great news.
In terms of the other
opening it sounds like a superficial extension of the main fistula (no internal
opening connection) or like a sinus which has been created through the rubbing of the seton. I had something similar in the beginning of this saga and my CRS laid it
open during my first operation (July 2017) and then it healed. My fistula is also at 12'o clock and the extension was heading towards the same direction, so sort of scary to put it mildly! My CRS told me at that time that this would be no problem and he was right, it has stayed fully healed since that date (mine was connecting to the external fistula
opening at skin level, very superficial).
the story with your uncle, my CRS told me the Cutting Seton will stay on for 15-20 days. He did not tell me about
rotating it, but we'll go into more details on April 20th when I'll meet him. I thought about
the MRI as well to be honest (I had one and a 3D ultrasound as well during 6/2017) Its fairly easy to get an MRI in Greece and not too expensive.
However, prior to my 2nd Filac I went and consulted another prominent CRS (CRS B) who suggested that my fistula was "simple, like I cought a cold" or something and that he could easily perform a fistulectomy. I suggested an MRI to him and he said "no need, in case I see something strange during the operation, I'll perform an 3D Ultrasound on the spot, which is better. However this is simple, don't worry".
Following this visit to CRS B, I realized that my fistula was in a better shape than it had been prior to the first operation, possibly due the distalizing achieved by my first FiLac (or the draining seton) and the good job that my CRS A had done with cutting the fistula extension.
So I decided to go for another FiLac with my CRS A...And post this 2nd FiLac surgery, CRS A who is very-very careful in regards to continence, says the fistula has now become very simple and superficial. I asked him about
continence problems and he said impossible...He also thinks that MRI is useless for my case. But I get your point, better safe than sorry...I may call him over the phone and ask him again (instead of directly confronting him with it and going into discussions).
CRSs are a creature of their own. For example, CRS A will not cut, he simply uses cutting seton, even for more superficial fistulas. CRS B suggested a fistulectomy...Really, the fistula business is very strange...And we pay to be guinea pigs!!
Post Edited (Dimitri71) : 3/17/2018 3:08:51 AM (GMT-6)