Lost my brother

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minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 2829
   Posted 2/26/2018 6:31 AM (GMT -6)   
My brother passed away suddenly yesterday. Since then, I have had diarrhea and constant abdominal cramps. I need to be strong as my mum is devastated but I can't. Took a tranquilizer at night but couldn't sleep. I don't know what to do to control my symptoms in order not to collapse.
GERD, perianal fistula, CD, IBS, persistent mouth ulcers & fissures
___________________
Meds: Remicade, Cortiment, Nexium, Imuran, colifoam, monthly B12 inj.
Pred 40 mg from Oct. 2010 till Jan. 2012
Previous: Mesalamine tablets & supp.
Failed:Azathioprine (generic), Methotrexate

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10559
   Posted 2/26/2018 7:22 AM (GMT -6)   
Oh minnie, I'm really sorry :'(

Don't worry about being strong. Let other people take care of the practical side of things. Just take care of you and your mum.
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16776
   Posted 2/26/2018 8:36 AM (GMT -6)   
Minnie, you have my deepest condolences. I am with NCOT, take care of you & your mum. Let others help as much as possible.
Susie
Moderator in Chronic Pain & Psoriasis Forums

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1909
   Posted 2/26/2018 10:03 AM (GMT -6)   
Aw Minnie I'm so sorry.
DX with CD Aug. 1982
Gerd secondary to crohns
Entyvio
Methotrexate
Monthly b-12 injections
40 mg Protonix / twice daily
Zoloft
xanax
folic acid

Newmommy26
Regular Member


Date Joined Nov 2017
Total Posts : 52
   Posted 2/26/2018 6:47 PM (GMT -6)   
So sorry to hear that Minnie.

73monte
Veteran Member


Date Joined Mar 2007
Total Posts : 1961
   Posted 2/26/2018 7:35 PM (GMT -6)   
Minnie,

So very sorry to hear of this sudden loss. You really need to do everything possible to keep your strength up. As hard as it is right now, I would strongly consider a short tern of anti-anxiety meds. Something mild like Xanax. A mild sleep med might help as well. So sorry again to hear this sad news.

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4483
   Posted 2/26/2018 8:15 PM (GMT -6)   
I'm so sorry about your brother. I hope you have a good support system around you. Be kind and patient with yourself.

clo2014
Veteran Member


Date Joined Feb 2015
Total Posts : 881
   Posted 2/26/2018 10:32 PM (GMT -6)   
Minnie,

I am so sorry for your and your families loss.

This is a difficult time for you. I urge you to talk to your doctors to ensure you do not go into a flare.

Sometimes when we are grieving it is ok to let others to be stronger...or to just lean on each other.

May your good memories give you strength and help you all navigate this difficult time.

My heart goes out to you. You all are in my thoughts and prayers.

Clo
06/12-07/14 symptoms start, no diagnosis.12/14 diagnosed UC & diverticulitis. 01/15 hosp- fistulas, DX changed to Crohns, 02/15 developed new skin rashes, eye problems and painful joints 06/15 Hosp.2x again.. new specialist.Said was worse case he's seen. 7/16 hosp 5mm Stricture stricturplasty to 15 mm.09/16 colostomy. Meds: Remicade, methtrexate, prednison,folic acid, vit D, calcium, pro biotic,

FamilyGuy
Forum Moderator


Date Joined Jan 2004
Total Posts : 3447
   Posted 2/27/2018 6:15 AM (GMT -6)   
Sorry for your loss. Take care of you while you take care of others. It's ok to ask for support yourself as you support others.

Thoughts and prayers are with you,

Jon
Jon, Co-moderator for Crohn's Disease & Celiac Disease forums

Labradorite
Veteran Member


Date Joined Sep 2009
Total Posts : 1125
   Posted 2/27/2018 11:27 PM (GMT -6)   
I'm so sorry for your loss, Minnie. Please remember to take care of yourself too. You can only be so strong.

Dimitri71
Regular Member


Date Joined Jul 2017
Total Posts : 155
   Posted 3/1/2018 4:28 PM (GMT -6)   
My condolences Minnie.

whatdoigotDOC!
Regular Member


Date Joined Feb 2016
Total Posts : 69
   Posted 3/3/2018 6:14 PM (GMT -6)   
I'm sorry to hear about your brother. God bless Minnie.

ambling
Veteran Member


Date Joined Feb 2011
Total Posts : 760
   Posted 3/4/2018 12:40 AM (GMT -6)   
That's really tough Minnie. Take care of yourself as best you can, you are the one who needs the help.
Best wishes.

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 2829
   Posted 3/4/2018 2:08 PM (GMT -6)   
Dear all, thank you very much. May my brother's soul rest in peace. Saw my GI and he put me on an antidepressant which functions as a sedative as well and said nothing else would control my symptoms.
GERD, perianal fistula, CD, IBS, persistent mouth ulcers & fissures
___________________
Meds: Remicade, Cortiment, Nexium, Imuran, colifoam, monthly B12 inj.
Pred 40 mg from Oct. 2010 till Jan. 2012
Previous: Mesalamine tablets & supp.
Failed:Azathioprine (generic), Methotrexate

dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1979
   Posted 3/8/2018 2:31 PM (GMT -6)   
Minnie, so sorry, you lost your brother. Such terribly sad news. May you and your family be comforted during this difficult time. (((((( Hugs )))))))
Dorri

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6180
   Posted 3/9/2018 3:25 AM (GMT -6)   
me too. sad for you. randy.

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 2829
   Posted 3/12/2018 5:59 PM (GMT -6)   
Dorri and Randy, thank you. My mum got sick and had to be hospitalised. Crohn's decided to show its ugly face and I'm flaring up. Tried as hard as possible to hide it so that not to make my mum worry but couldn't; pain, nausea and vomiting cannot be hidden. The whole situation is very hard. We all need your prayers.
GERD, perianal fistula, CD, IBS, persistent mouth ulcers & fissures
___________________
Meds: Remicade, Cortiment, Nexium, Imuran, colifoam, monthly B12 inj.
Pred 40 mg from Oct. 2010 till Jan. 2012
Previous: Mesalamine tablets & supp.
Failed:Azathioprine (generic), Methotrexate
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