Thank you all!
@straydog, I'm so glad it got better when when you got off the humira! That was sort of what happened to me with it minus the skin involvement. I was much better but not completely 100 percent until the crohns s flared again eventuality. I feel like I'm having the same problem with the remicade now. I found two small spots - one on the knee that bothers me and the hip on the same side that *might* be psoriasis. I never would have noticed it if I wasn't looking so it's pretty mild if that even is what it is.
@clo, I'm so sorry you are still dealing with so much discomfort! I will have to look into the turmeric. I know what you mean about
feeling like your imagining it! I feel the same way to the point I could cry, the only validation I get is when the feeling lifts or breaks after weeks of it and it's this feeling like "oh my goodness, this is how I am supposed to feel" and I realize how scary bad it was for awhile. Then I go back to forgetting how bad it was until the cycle starts all over again
. I am super lucky though that my rheumatologist has not doubted me and has emphasized my symptoms are an issue even in when I'm feeling better and minimizing the issue so I've gotten a lot farther with figuring it out I think. I was originally dismissed by other doctors as it being crohns arthritis but I think that is seeming to be less the case at least right now. As for stopping the remicade, you and I would probably both see this issue disappear (mostly) and the crohns flare like I had happen when I quit the humira. I wish there was a better set of choices. Can't say I expect any other drug to work as well as the remicade has for the crohns so I'm skeptical about
making changes. Not sure whether I may need extra or what at this point
@Ides thanks for the link, it's extremely helpful! I'm very glad that the remicade has worked so well for you! I'm hoping maybe more will do the trick for me.