Not sure if my Crohn's is back?

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Regular Member

Date Joined May 2007
Total Posts : 70
   Posted 3/18/2018 8:43 AM (GMT -6)   
Hi ,
I have not been here in a very long time because I've felt great since my ileostomy back in 2010. Lately though, I've been feeling pretty crappy. Before my surgery back in 2010, my disease was only in my rectum and large colon. I'm not sure how I would feel if my Crohn's should come back in my small colon since I've never had disease there. I've had so much output in my ostomy, and the sounds it has been making is quite embarrassing.! Also, I just feel so weak!! My body aches to the point of me not wanting to do anything. My insurance has changed and I need to find a new gastro. Has anyone else been in my shoes with feeling great for a long period of time and then all of a sudden, boom here we go again!

Elite Member

Date Joined Jan 2010
Total Posts : 10559
   Posted 3/18/2018 2:03 PM (GMT -6)   
When did it start? It does sound like it could be Crohn's but equally it could be an infection. I got norovirus when I had an ileostomy. It was brutal: watery output was pouring out. Careful you don't get dehydrated. Keep your fluid intake up and make sure you get extra salt as well. You can buy ridiculously expensive oral rehydration drinks from pharmacists, make your own for next to nothing (google recipes), or add a quarter teaspoon of salt to a 500ml bottle of Gatorade or similar type drink - commercial sports drinks don't have nearly enough salt in them to count as a true electrolyte solution.

Good luck, and hope you get to see somebody soon.
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)
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