Posted 4/15/2018 6:29 AM (GMT -6)
So as most know, I had a major bleed, taking 6 pints of blood. Now that I am back and we are starting the recovery and discovery of what happened, I asked my GI about supporting my request to take a 3 month short term disability leave from work. He looked straight in my eyes and said, well for most patients who have the disease as bad as I do, he starts at a 6 month leave, and then will consider more. Wow. I was shocked as I know I have a lot of problems but I tend to work through the,. I told him this and he flat out said, I needed to stop. This bleed should be my wake up call that I am very sick and I need to tend to myself, and stop worrying about work. He had all my records from my 5 days in the hospital 7 hours away. He pointed out a few facts that he thought I should know: 1) I was in critical condition for about 24hours (2) my blood pressure was as low as 70/30 (3j I was having trouble breathing (4) when they did the colonoscopy they put me on a full ventilator due to my breathing issues. (5) they released me with my hemoglobin only at 8 and today is is 7.9. So, I get it. He said to have the disability insurance company send him the paperwork and he would fill everything out.
No, he said let’s focus on the bleeding. He had scheduled three tests, but no scope as he does not want to risk it. He will send the info to Mayo Clinic for a consult. He said there is a possibility that I could need another surgery as there is eveidence that some bleeding ulcerations that show up at a resection site are caused by unhealthy bowel or bowel that started to die after surgery, even through it looked healthy when the surgery was first performed. This is different than crohn’s ulcerations. He also is looking to add some new medications to the stelara since my joint as overall feeling better on it. I have no other biological drugs to try so he does not want to give up on stelara yet.
So with all of this, this is why he said a min of 6months. Meanwhile, my a-fib has been goin ghaywire, in fact i as in a fib in his office and he commented on it as he was listening to my heart. So, my PCP in concentrating on this and some other issues they have found. The PCP agrees with the 6months and said he will support it in writing to the disability insurance company.
I am so glad I have such a thorough GI and PCP. And they are working together. Long term I am not sure I even can or want to go back to work after th 6 months. This episode has been a wake up call and I know I need to stop being the tough guy