Dietary nonsense

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justwantofeelnormal
Regular Member


Date Joined Feb 2014
Total Posts : 49
   Posted 4/16/2018 12:46 PM (GMT -6)   
Stuff like this is so frustrating. This is literally the opposite of what most Crohns docs would say. No one knows what they're talking about http://www.bwhcrohnscolitis.org/ibd-101/nutrition-diet/foods-to-avoid-flares/

beave
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Date Joined Mar 2007
Total Posts : 1669
   Posted 4/16/2018 3:12 PM (GMT -6)   
This is a list of foods suggested for when a person with IBD is not flaring, ie, is in remission. Most Crohn's docs would agree with it, from my experience. There is (very limited) evidence that eating well like that can reduce/prevent future flaring of the disease.

Now, when a person is flaring, the list would be very different, to be sure.

But you're absolutely right that many - or most - people with IBD would have a hard time with many of the suggested foods. That's the catch-22 involved here - it may be better for one's IBD to eat well, but it's exactly the foods that constitute 'eating well' that are the ones that are hard to tolerate.

JakeB
Regular Member


Date Joined Dec 2008
Total Posts : 99
   Posted 4/16/2018 4:00 PM (GMT -6)   
There is not a "one size fits all" diet for people with this disease. It really is an individual thing. What I have a problem with is when people push certain diets on someone like me, like my "low fiber" diet that I follow is what is causing my Crohn's (all that junk food you are eating is causing it). That, to me, doesn't sit well and really upsets me. If I want to have some McDonalds chicken nuggets sometimes, those sit well with me... and I will eat them! They are not causing my disease, making it worse, etc. I don't eat them frequently because they are somewhat greasy and greasy food just in general doesn't sit great, but it sure sits better than if I had boiled broccoli, beans, or a salad!
29 year old with Crohn's since 1998
Medicines: Remicade (restarting 2/2018), Methotrexate
Supplements: vitamin D, zinc, b12, multivitamin

lazyminimoo
Regular Member


Date Joined Feb 2018
Total Posts : 50
   Posted 4/19/2018 3:38 AM (GMT -6)   
I dont think diet causes crohns , some people were vegan for years anyway then got crohns, why do some people eat terribly an dont get crohns but others who eat better do get it, doesnt make sense to me
Had my colon removed sept 2017 in emergency surgery because it perforated because of toxic mega colon, was told i had uc originally but that changed to crohns when the pathology came back after
have ileostomy probably permanent

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16020
   Posted 4/19/2018 9:03 AM (GMT -6)   
I personally have tried various things in the food department. It is an individual thing & choice. To this day there are foods I totally avoid. I don't know, perhaps someone that has a very, very mild disease maybe, or were they misdiagnosed, who knows. I have read many posts in this forum & the UC forum over the years, new members claiming diet fixed them, well, as it turns out they did not have IBD, infectious colitis, not the same. Let's be honest the internet is full of fad diets just like the claim of fad cures!! Then another thought is some people are the type that think they have to be in control of every aspect in their life. This particular type of person will jump on the wagon of I can fix this with diet. They are in control, is it a placebo effect, who knows. I take it all with a grain salt. I would like to think the average person knows a healthy diet can go a long way.

I know people will come through here claiming they have the cure, blah, blah blah. It can be irritating for some, but just keep in mind, we really know nothing about anyone that comes to public forums. Not worth getting all upset over.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Post Edited (straydog) : 4/19/2018 9:40:40 AM (GMT-6)


IamCurious
Veteran Member


Date Joined Jan 2010
Total Posts : 3147
   Posted 4/19/2018 11:53 AM (GMT -6)   
JakeB said...
If I want to have some McDonalds chicken nuggets sometimes, those sit well with me... and I will eat them! ...
but it sure sits better than if I had boiled broccoli, beans, or a salad!

No argument here. I have no problem eating chicken nuggets but eating broccoli, along with most cruciferous veggies, will soon trigger a flare for me.

straydog said...
someone that has a very, very mild disease maybe, or were they misdiagnosed, who knows. I have read many posts in this forum & the UC forum over the years, new members claiming diet fixed them, well, as it turns out they did not have IBD, infectious colitis, not the same.

When I was in a flare my symptoms were as bad or worse than most of what I read here in HW. Multiple colonoscopies over the years with biopsies leave no doubt that I have IBD.

Monitoring my diet for my individual triggering foods, (like broccoli, see my signature), helps me maintain my remission. I may need meds (antibiotics) to get out of a flare but otherwise once in remission I don't take meds. But I find that supplements such as curcumin, psyllium seed, probiotics, etc., are very helpful. Research published in NIH's PubMed indicate that these can be just as effective as mesalamines for prolonging remission.
Male, born 1951, DX IBD Feb08. No meds, allergic to Mesalamine. Food diary instead of SCD or Paleo.
When needed VSL#3DS sprinkled over powdered psyllium seed is very helpful.

Lactobacillus Reuteri (NCIMB 30242), Culturelle, Saccharomyces boulardii.
Fish oil, curcumin, extra D3, magnesium, multivitamin, glutamine when gut repair needed.

Resistant Starch and lots of fruit & vegetables (but no cruciferous), No Gluten, no soda, no HFCS, no shellfish. No processed foods with maltodextrin, sorbitol, polysorbate80 or carrageenan. No GMO foods saturated with Roundup.
Nature created all of the locks, therefore Nature has all of the keys

ambling
Veteran Member


Date Joined Feb 2011
Total Posts : 705
   Posted 4/19/2018 5:58 PM (GMT -6)   
This is the Crohns board IAC. Mesalamines are next to useless for us, so saying that stuff is as effective as mesalamines is saying it is useless.

Yeah, the structural changes in Crohns; obstructions, loss of bowel from surgeries, wall thickness inflammation, small bowel involvement, make any kind of diet a nightmare. I love veggies,fruit, salad and healthy organic food. But more than a morsel can wreck me sad.

Everyone seems to eat the best they can, according to their own situation. And during a flare.....it's just OUCH.

Canada Mark
Veteran Member


Date Joined Jan 2013
Total Posts : 3506
   Posted 4/19/2018 7:41 PM (GMT -6)   
I've had chronically low intake of 'healthy food' i.e. veggies over the years. And agree with Breve about 'eating well'. We seem to be forced to choose the lesser of two evils - low intake of 'healthy foods' or inflammation caused by 'healthy foods'. It's frustrating to all of us I am sure.

However I did want to motion something - recently I've found success over the last month and a bit by juicing my veggies. On the surface it seems it's the fiber my body did not like (so-far). I started with just veggies from my safe list which was about 4 items and gradually added more variety over time.

The interesting thing is the first week was a little rough but I stuck with it because 'it felt right' or ok I guess one could say. Not like the start of an IBD flare. Just loose stool and D, but over time my body seems to have accepted it and things have normalized to solid stool. I can now juice Kale, Collard Greens, Carrots, Cucumbers, Beets, Spinach and so on. These's things would normally take me out if I ate the raw/cooked veggie. I have about three glasses a day now - or one with each meal.

My energy level is sure up... But I have never tried juicing in the past while in a true flare or highly active disease state. I might be a bit hesitant should this be the situation.

As for the other items on that list - grains and fermented foods seem to be a no-go with serious consequences even though I am technically in 'full remission' according to my GI and recent tests. I'm not willing to risk flaring by trying to re-introduce them at the moment. I'm probably pushing my luck a little with juiced veggies.

Anyway, I think ambling summed things up perfect - "Everyone seems to eat the best they can, according to their own situation. And during a flare.....it's just OUCH."
Diagnosed Crohns-Colitis 12-13 years ago - Past Meds: Antibiotics, Prednisone, Methotrexate, Imuran, Remicade - Current Meds: Imuran 150mg/daily, Natural: WOO/Thyme Oil, All organic food no additives as best as possible. I stopped taking probiotics as I felt they were not helping much.

“The only person you're destined to become, is the person you decide to be"
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