Hi everyone! I joined the forums hoping to get some feedback about
what I should do about
my current situation.
Since September I've been having really bad gastrointestinal issues. Growing up I would have occasional issues with IBS but these past few months have been horrible and much different than what I experienced dealing with IBS. I'll have horrible cramping and D that started relatively soon after I ate. More recently, it'll be hours after I've eaten anything and then I'll start having horrible cramping that can last for hours. Then after the cramping I have really bad D. It's getting to the point where I'm not able to leave the house much, if anything out of fear I might have a "flare".
I also have some other Crohn's related symptoms like extreme exhaustion, low grade fevers, eye dryness and irritation, and joint pain. I can sometimes tell when I'm going to have a "flare" because I'll feel feverish an hour or so before it hits or my knees will start hurting very badly. On top of both, I'll be exhausted and be able to sleep an entire day away right before a "flare" starts up.
I went to a GI in late September of last year who didn't want to run any tests because he was sure it was just IBS. After months of dealing with these issues getting worse, I went to a new GI in March. He had me do the basic breath tests, blood work, stool sample to check for infection, that sort of thing. When none of those came back with anything, he ordered a colonoscopy. I requested an endoscopy as well because I understood an endoscopy went into the ileum and jejunum which is where I believe my Crohn's is the worst (because of stabbing pain in my upper left and cramping in my lower right quadrants). When I asked right before the procedure, he said that they wouldn't be looking at any part of my small intestine except for the very top which connects to the stomach (duodenum).
After the colonoscopy/endoscopy, I was told by the nurse that they saw inflammation in my colon and also bile acid in my colon and I was "diagnosed" with colitis. They also took biopsies along the way and I was told they would call with the results when they got them. Today, a nurse called and said that the GI believes I have IBS and should try taking IB Guard and follow up in two months.
I'm confused and upset by these results. From what I've read, inflammation doesn't occur in IBS. Also, they didn't go into my small intestine which is where my disease, I believe, is located. I don't want to keep GI hopping but I also don't want to keep living like this. I'm at my wits end here. I really think I have Crohn's disease. What would you recommend that I do?
Thank you so much for reading! I know this is a lot of text.
Post Edited (katieq132) : 5/4/2018 4:09:01 PM (GMT-6)