The main question I have that keeps me confused is why my GI doctor, after explaining how antibodies to Remicade can cause a Lupus like condition, sent bloodwork out for the Prometheus test and told me it was fine and to stay on Remicade.
Are the ANA and anti-dsANA tests totally different tests for other antibodies? How can Remicade antibodies not be evident in one test and other antibodies due to the Remicade infusions be causing DILE? And why isn't my GI doctor and my PCP aware of this? They told me to see a rheumatologist to find the cause of my joint pain! This is what makes me question the possibility of Lupus that isn't from my biologics. I hope the rheumatologist is a lot more knowledgeable and can help me get the right treatment or stop the Remicade and hopefully see some improvement. Humira is not an option because I tried it first and it failed. I had to have surgery after that and now have a colostomy.
Thanks for your replies, friends. I appreciate the input.