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DiSquared
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Date Joined Sep 2017
Total Posts : 15
   Posted 5/28/2018 4:07 PM (GMT -6)   
Does anyone else have the pleasure of having IBS and Crohns?

gumby44
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Date Joined Nov 2007
Total Posts : 4480
   Posted 5/28/2018 4:11 PM (GMT -6)   
Yep. It is a constant challenge! I have had bowel re-section surgery and I am in remission with Crohn's but struggle constantly with SIBO (small intestine bacterial overgrowth) and slow motility. Right now we are experimenting with one week of Flagyl followed by three weeks off antibiotics. We are trying this for three months. I'm not sure if it helps yet. Any specific questions??
59 yr. old female, diagnosed with Crohn's in terminal ileum Sept-Oct. 2007. Dx. with c.difficile 1/12, 10/14, 11/15, 1/16. Fecal transplant on 2/24/16, and so far, no more c.diff!

5/20/14: Ileo-colic resection surgery after stricturing and partial bowel obstruction.
Not currently on any Crohn's meds and in remission, but struggling with bad IBS.

DiSquared
New Member


Date Joined Sep 2017
Total Posts : 15
   Posted 5/29/2018 1:05 AM (GMT -6)   
Do you also have pain/nausea after eating every time? Mine has gotten to the point where I don’t even want to eat anymore. Good news for your crohns! My inflammation has disappeared after starting Remicade. My doctor suggested IBS because I’m still having pain.

NiceCupOfTea
Elite Member


Date Joined Jan 2010
Total Posts : 10555
   Posted 5/29/2018 3:04 PM (GMT -6)   
Checking in.

That said, I'm not sure if I'm in remission or not (I suspect not), so I can't rule out Crohn's completely. But I used to have worse and more extensive inflammation in the past with less stomach pain than I have nowadays. So I think some of it is IBS at least; after 18 years of Crohn's and two bowel surgeries, I think that my bowels have become more sensitized to pain. It absolutely sucks, not least because there is no obvious solution - more surgery isn't gonna help.

Do you get the pain/nausea immediately after eating or a few hours later? Immediately afterwards suggests possible stomach/duodenum issues, whereas if there is a delayed reaction it's more likely to be IBS.
Dx Crohn's in June 2000. (Yay skull)
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4480
   Posted 5/29/2018 4:36 PM (GMT -6)   
No I don't have nausea after eating, but I did when I had c.difficile, a bacterial infection. I think you should ask your GI to order stool cultures to rule out any infections. Also, nausea can come from gastroparesis, meaning slow stomach emptying. There is a barium swallow test that you can do to check for that and medication that can help increase stomach emptying time. I used Domperidone a drug prescribed in Canada but not the US, that was helpful. For me the gastroparesis was caused by chronic c.difficile and once we fixed that then the gastroparesis also went away. That's not the case for everyone. You also might have reflux causing the nausea. There are probably other causes I'm not thinking of. But your doc shouldn't chalk up your pain to IBS without checking out other causes first.
59 yr. old female, diagnosed with Crohn's in terminal ileum Sept-Oct. 2007. Dx. with c.difficile 1/12, 10/14, 11/15, 1/16. Fecal transplant on 2/24/16, and so far, no more c.diff!

5/20/14: Ileo-colic resection surgery after stricturing and partial bowel obstruction.
Not currently on any Crohn's meds and in remission, but struggling with bad IBS.

papalane04
New Member


Date Joined May 2018
Total Posts : 1
   Posted 5/29/2018 9:54 PM (GMT -6)   
Hello everyone I have crohns. I have had it since 1997. I have had one surgery they took out 2 foot of my large and small intestine. I have been on it all. Rimacade every six weeks, 6mp, assacal, prednisone,flagyl, levaquine, azathioprine, Imuran. I am a paramedic so when I was told I had crohns my first question when they wanted to put me on 6mp was what kind of effects was this going to have on my job. They told me they did not know. I have trouble now when I get the urge to go because they removed my secail valve at the top of the large intestine. It has been an adventure over the years. I have a constant pain all the time in my right side in my lower abdomen at the desending colon. My crohns is in my large intestine where it connects to the small intestine. My surgery was in 2001, by 2002 the crohns was back. People have no clue what we go through unless they have crohns or UC. And its not only your problem it effects your whole family. I was on azathioprine and assacol for 4 years, then they put me on pentasa and Imuram for 4 years. I took myself off of all my meds for six years to give my body a rest from the autoimmune drugs. And also my insurance at that time refused to pay for any of my meds. Two years ago had a bout with it and wound up in the hospital. So now I am back on pentasa. Not doing a real good job but better than nothing I rekcon.

DiSquared
New Member


Date Joined Sep 2017
Total Posts : 15
   Posted 5/29/2018 11:46 PM (GMT -6)   
To Ncot: Yes, the pain/nausea is pretty immediate... My endoscopy in 2016 showed mildly erythmouths around/on the duodenum. I never thought about that still being inflamed I just assumed everything was healed with the remicade because of the response I’ve had in my colon.

To Gumby: I had several tests ran when I was in the hospital two months ago all cam back negative.
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