Posted 5/29/2018 8:54 PM (GMT -6)
Hello everyone I have crohns. I have had it since 1997. I have had one surgery they took out 2 foot of my large and small intestine. I have been on it all. Rimacade every six weeks, 6mp, assacal, prednisone,flagyl, levaquine, azathioprine, Imuran. I am a paramedic so when I was told I had crohns my first question when they wanted to put me on 6mp was what kind of effects was this going to have on my job. They told me they did not know. I have trouble now when I get the urge to go because they removed my secail valve at the top of the large intestine. It has been an adventure over the years. I have a constant pain all the time in my right side in my lower abdomen at the desending colon. My crohns is in my large intestine where it connects to the small intestine. My surgery was in 2001, by 2002 the crohns was back. People have no clue what we go through unless they have crohns or UC. And its not only your problem it effects your whole family. I was on azathioprine and assacol for 4 years, then they put me on pentasa and Imuram for 4 years. I took myself off of all my meds for six years to give my body a rest from the autoimmune drugs. And also my insurance at that time refused to pay for any of my meds. Two years ago had a bout with it and wound up in the hospital. So now I am back on pentasa. Not doing a real good job but better than nothing I rekcon.