Hi all. It's been a while. I was nearly going to have my first surgery 9 years ago when I tried Humira as a last ditch attempt to avoid it. I was getting blood transfusions every couple months and I was as thin as a rail. Needless to say, Humira was a miracle. I've gained 30 lbs (this is a good thing), my haemoglobin and iron have been normal and for the most part I've felt great and have lived a full and normal life.
Anyway, the past 5 days haven't been so good and tonight I did some catching up on treatments in case the Humira is not going to keep working. Honestly, I wonder if I'm getting therapeutic benefit at all from the Humira since I've been taking it for 9 years and I could have developed antibodies. It's great to see there have been at least a couple new treatments added.
Anyway, I took one dose of Remicade 16 years ago - back when they just gave you one treatment. It worked great right away but then of course the benefit wore off. I know there used to be concern that infrequent use of Remicade can increase the likelihood of antibodies. Is this still the current thinking? I was thinking that since Remicade worked for me before and because it's an anti-TNF like Humira - it might be a good next step. Then I could keep the newer options like Stelara and Entyvio in my pocket for possible future use.
What are your thoughts?
It's nice to recognize some familiar names: Ides, straydog, NCOT, 73monte, beave.
42 y/o male. Dx'ed in 1999. No surgeries.
Current meds: Humira 2/27/09. Proferrin iron pills. Flax oil, probiotic.
Pervious meds: 6MP (some success), MTX (nightmare), Asacol/Pentasa (useless).
Post Edited (Rider Fan) : 5/30/2018 10:48:47 PM (GMT-6)