Posted 8/13/2018 4:30 AM (GMT -7)
Susie, thanks for the clarifications. I didn’t have an exit review when i left mayo as i had testing alll the way to the end. I have a phone interview with them late this week and plan to bring all of this up.I see my local GI on Thursday. He will want to compare his scope from Nov with the one mayo did to see if there is more ulcerations.
Also, i have been approved through the end of my max short term disability, which is 6 months and ends Sept 30. I have asked the insurance co to move me to long term. I have given up the fight to try to get back to work for now. All 4 of my local Drs have all said they support my decision and will write up what is needed to support the long term. I started seeing a therapist who has worked with my local PCP on my anxiety. I told him about my stress around dealing with al of this. His comment was in all of his 42 yrs of practice he has only seen 2 or 3 patients form whom disability was so obviously necessary. He said he added me to his list now. I asked about paperwork, and he said this isn’t his first disability rodeo and he can be very persuasive in his notes, and forms. He made me feel so much better about this as I was feeling guilty about taking long term, So, with their support and encouragement I am going that’s route.
surgeries: 2 resections at terminal ilium, open heart surgery, infected lymphocele surgically removed, crainotomy to remove benign tumor; adominal hernia,
Failed: remicade, cimzia, methotrexate, humire, 6MP, entyvio
medications: stelara , verapamil , quinipril, labetalol, clorithidone, atorvastatin, alluporinol, elliquis, Xanax ER