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U B Tough
Veteran Member


Date Joined Aug 2015
Total Posts : 986
   Posted 8/11/2018 11:07 PM (GMT -6)   
Hi DC,

Just wondering how you are doing on the stem cell trial?

I see the doc on Sept 13th and hopefully the study will be ready to start. Colonoscopy on Aug 30th to see where I'm at. Was doing extremely well on Stelara/imuran but I'm fearful that I may have another abscess forming.
UC/Crohns - tested positive for MAP antibodies & mycobacterium
PG- remission
chronic fistulas. Failed setons...it was pure torture.
started Stelara May 24, 2017. 150mg imuran

Current: 2/day, mostly normal, on Stelara!

IVIG on occasion.

DCCrohns
Regular Member


Date Joined Jul 2011
Total Posts : 34
   Posted 8/12/2018 8:14 PM (GMT -6)   
Thanks for checking in! It's a waiting game now, but I head back up there tomorrow morning for MRI and such. Fingers crossed.

Exciting to hear that you may be a candidate...fingers crossed for you, as well.
Diagnosed: 2002
Past Meds: Pentasa, Remicade, Cimzia, Asacol, Cipro, Flagyl, Lialda, Humira
Current Meds: Stelara, Azathioprine (150mg/day)

Surgeries: Fistulotomies & Seton Placements (2011-13); Advancement Flap (12/2013); Temp Loop Ileostomy (7/2016); Fistula Repair w/ Gracilis Muscle (9/2016); Fistula Repair (12/2016); Seton Placement/Stem Cell Harvesting (4/2018); Plug with Stem Cells (6/2018)

U B Tough
Veteran Member


Date Joined Aug 2015
Total Posts : 986
   Posted 8/14/2018 4:06 PM (GMT -6)   
Thank you DC...please keep me informed! I'm anxious to put a "period" to the end of this fistula nonsense.
UC/Crohns - tested positive for MAP antibodies & mycobacterium
PG- remission
chronic fistulas. Failed setons...it was pure torture.
started Stelara May 24, 2017. 150mg imuran

Current: 2/day, mostly normal, on Stelara!

IVIG on occasion.
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