I being a male i know i have a slightly different perspective, but I consistently get told I am the healthiest looking sick person they have ever seen, this even comes from medical staff. One day I was seeing a new Dr who had all my files. The nurse calls my name and i walk over, she proceeds to restate my name and said you cant be ..please state your birthday...she said she assumed i was in a wheel chair...ugh.
I have had plenty of pity parties the last 24 months with all i have had going on. Only when i finally accepted I needed help and went to a therapist did I finally get comfortable with myself and how i feel and how no one else understands how you feel. I too never wanted to stop working, yet, but the therapist got with my GI and they said I needed to go out on long term disability. I am in that process right now, but I am so much happier being around my family and friends who truly understand me.
I suggest you find a good therapist or such if you can. I assumed I was Superman and could manage the stress since i do it all day at work with my job, but the therapist has been the best thing i have done in a long time. He works closely with my GI and now my PCP o make sure they are addressing me in total.
I hope this helps
surgeries: 2 resections at terminal ilium, open heart surgery, infected lymphocele surgically removed, crainotomy to remove benign tumor; adominal hernia,
Failed: remicade, cimzia, methotrexate, humire, 6MP, entyvio
medications: stelara , verapamil , quinipril, labetalol, clorithidone, atorvastatin, alluporinol, elliquis, Xanax ER