Been on the steroid drops for quite a long time now - couple of years. But it's only really in the last year that I've not been able to stop them for longer than a few days or a week at most. I don't tend to bother with a formal tapering down anymore - used to do the whole reducing-by-a-drop-a-week thing but found it made no difference to the speed the uveitis came back afterwards. So now if I get an acute attack (pain, redness) I will put in a drop or two every half an hour or so until it goes - after a few hours it's usually gone again.
The rest of the time I will maintain on one drop a day on average. Sometimes I leave it in a forlorn hope the uveitis won't come back, but it always does.
Incidentally I take a different brand to you: Maxidex. My last opthalmologist tried me on Pred Forte, which he said was stronger. I did do the whole tapering down thing for that, but it didn't seem to work any faster or better and the uveitis still came back a week or so after stopping. So now I just stick with Maxidex, taking as little as I can to keep the uveitis under control.
I get my eye pressure checked whenever I see the opthalmologist or go to eye casualty, so once a month or so depending on how often I go. My current bottle is running low, so I will try to go before it runs out fully. Luckily every time I've had my eyes checked my eye pressure has been fine. I don't know how long it's safe to be on the drops for without getting your eyes checked, but I suspect it's heavily dose-dependent, e..g high doses will be riskier than low doses. Oral pred on top won't help. And 80mg is a mega high dose: normal starting dose for pred here is 40mg. I was on Pred an awful lot in the past, but since my surgery in 2013 I've not had any reason to go on it. However, between Pred and the biologics (Remicade, Humira), that may have kept any would-be uveitis under control.
The Hashimoto's has been kept controlled with levothyroxine - strangely, it was my GI who first detected it when it was subclinical and predicted I would get full blown hypothyroidism. He was right, although it was my GP who diagnosed it 2 years later. That said, there doesn't seem to be any correlation between Hashimoto's disease and IBD. So the fact I have it is most likely mere coincidence, unlike with the uveitis.
Re biologics: the only one left I haven't tried is Stelara. I'm not sure if I'll be able to go on it or not. A lot depends on what happens with Brexit next March and if they can fudge an agreement which keeps things the same... If they can't do that, then there's going to be serious disruption to the supply chains which bring in food, meds, etc. into the UK.
So yeah. It's an incredibly anxiety-inducing time at the moment. I have regular panic attacks over it. I haven't seen my GI since last October - another reason I was so annoyed he wasn't in this week!
I hope you can manage to get your uveitis under control. I dunno if it's worth giving Maxidex a try - it's a different steroid to the ones you're taking. Likewise, I might ask about
trying Durezol next time I see the ophthalmologist. I would have a steroid eye injection if I thought it would work - hell, I would go back to a permanent ileostomy if there was a guarantee it would get rid of the uveitis for good.
Dx Crohn's in June 2000. (Yay )
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)