mirowpl - Good on your two sons. I have a Facebook account but I never post there anymore and rarely visit. To be honest, I wouldn't use Facebook out of principle. It's not just that it's a data-harvesting monster, it's a monster which has got out of control. Hopefully this next bit won't be too political for this forum, but Facebook data is used for a lot more sinister purposes than personalised ads. It was used to help illegally gerrymander the Brexit referendum for example. Facebook looked the other way whilst 50 million users' data was stolen by data-mining companies (of course FB knew about
it; it even enabled it). This data was then used to target susceptible swing voters with specific interests on Facebook.
Even if that highly secretive social media campaign had no effect (and there was good evidence it did), there is no way I could support a company who allows its users' data to be abused in this way.
iPoop - If I google Crohn's forum, Healing Well doesn't even come up on the first page and crohnsforum.com is way down at the very bottom. It wasn't that long ago that both sites were in the top 2 or 3 on the first page if you googled Crohn's forum. HW isn't to be found on the 2nd or 3rd page either. Dang. No wonder its traffic is down.
I'm hoping that HW doesn't adopt any of the things you mentioned! Particularly up/down votes. All that tends to happen on small forums is that the most popular users get lots of likes, whilst less popular or less well known users get far fewer likes. It's just pointless. I left one forum largely because of that - it didn't just have 'likes', it had 'favourites', 'inspirings', 'rainbows', 'hugs', etc. The posts were generally quite high quality (as they are on Reddit actually), but all the huggy wugginess did my head in.
You may be onto something with a "general chat" forum or forums for other subjects besides illness though.
Dx Crohn's in June 2000. (Yay )
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)