Hi Miranda, sorry for the delay in response. I didn’t want to write before I talk to my GI about
what we will do regarding the treatment.
We will probably start humira, first the loading doses then weekly injections. I have tried weekly humira with imuran before without success, but at that time I was severely ill, which was before my resection surgery. The surgery helped a lot, so is learning about
my food sensitivities and adjusting my diet according to them.
I have been living with a stoma for the last 3.5 years. The thing that worried us most is the fact that the abscesses are formed in the surgically diverted, unused area (stump?). Makes you think if this happened in the area that’s not been used for years, what might happen in the same area if we make an anastomosis...
On permanent stoma: I won’t go down that road unless I have no other choice. Total proctocolectomy is risky for men, and living with a stoma is not good. It isn’t terrible, but I try to avoid it if I can. If it meant a cure like it is for UC, that would be a consolation at least; but you still have to face Crohn’s all your life, even the risk of short bowel syndrome.
P.S. I will be looking forward to your updates on your experiences with Stelara. Hoping it will resolve your issues completely.
Post Edited (xy123) : 7/12/2019 4:42:01 AM (GMT-6)