It can happen getting the diagnosis changed, especially now that you have a fistula. Try to take a deep breath & not let yourself fall into a black hole. What medications have you tried in the & what are you currently on? There are different types of fistulas, where is your's located & the severity of disease? I think it's a good sign that you are not having symptoms & medication may take care of it. Try not to panic because you are being referred to a surgeon. It is good to have an opinion of a good colo-rectal surgeon, it does not mean you will need surgery.
There has been some members here that was on Stelara for treatment of fistulas. One member that comes to mind is U B Tough. She had a really bad time & the last we heard from her Stelara was working, so please do not give up hope. Years ago I had a recto-vag fistula & Remicade took care of it. A lot of drs still put patients on Remicade for fistulas because it has a good track record of healing them. At the top right corner is Custom Search, click there & type in crohns forum U B Tough, you should be able to pull up a lot of her posts & read about
I am sorry to hear about
your friend, however, keep in mind we have lots of treatments options available today. Another good source to educate yourself about
crohns & fistulas is, CCFA.org. It is a excellent site with accurate info about
crohns & medications used to treat. I urge you to visit that site. Educate yourself about
crohns, fistulas & treatment, it will help you a great deal.
Keep us posted.
Moderator in Chronic Pain & Psoriasis Forums
Post Edited (straydog) : 11/30/2018 8:28:02 AM (GMT-7)