Would your wife go with you to your appointment next week? Might help if you had two of you there instead of one. I don't think you are overreacting from everything I've heard.
As for the psychological aspect, it's not about
your hospital "winning". It's about
you doing everything you can to delay permanent damage to your bowels whilst you wait for them to do their job properly or you find a new hospital. I understand the frustration but don't neglect to look after yourself in the process. Hopefully you can get some pred next week as well to tide you over. If they won't consider pred, ask about
Entocort - it's a topical steroid, hence safer, in the short term at least.
Dx Crohn's in June 2000. (Yay )
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)