Posted 1/18/2019 8:44 AM (GMT -7)
My wife was diagnosed with Crohn's when she was 16 years old, that was 29 years ago. She's had three bowel resections, her latest one was July 2018 and it was a small bowel rehabilitation surgery. They had to repair scaring from years dealing with Crohn's and previous surgical procedures that didn't age well. It was very successful and she felt the best she has in years until the past week.
She started feeling discomfort on her right side. Her GI and surgeon ordered a CT Scan and now they ordered a colonoscopy. The CT scan shows some dilation on the right side, and something on the left side but they said it could be nothing. The surgeon said the surgical sites looks good in the scan, but they need the colonoscopy to be clear what's going on.
They aren't saying it, but my wife and I are thinking it is Crohn's inflammation.
She was on Remicade, Humira, and she is now on Stelara not mentioning all the past steroids, a slew of other medications over the years, and all the supporting medications. Humira did really well for her (7+ years in remission), but the effectiveness wore off, so she went to Stelara. Ever since she's been on Stelara, I feel she has been on a slippery slope never getting her feet under her.
Assuming Stelara is ruled ineffective, what would be next? I saw Cimzia and Entyvio. Any positive stories with these meds?
At this point, we are hoping it's active Crohn's and not structural issues, although active Crohn's isn't the best outcome. But, it will be better than hearing more surgeries. Colonoscopy is next week and we'll learn more then.
Thanks for any feedback.