To clarify . . . Adhesions and scar tissue are opaque to imaging studies. Adhesions and scar tissue is normal connective tissue, but connective tissue that is thickened and misplaced and on hyperdrive. Adhesions and scar tissue, by itself, will not be apparent nor visible on CT, MRI imaging.
What can be seen are acute findings of scar tissue, if present. Example: Where an area of small intestine is entrapped by a band of scar tissue, the area restricted will be visible as enlarged or dilated intestine above the stricture. Example: A good volume of fecal matter retained in the large intestine will be seen, and suggestive of scar tissue or underpowered intestinal motility.
On thing that is apparent . . . Physicians have become increasingly reliant on CT and MRI imaging to the exclusion of any other information. But CT and MRI are grossly limited. They identify structural or anatomical abnormalities. They are only as useful as the radiologist interpretation.
Imaging has NO usefulness in indentifying functional disorders nor disorders in the “how does an organ or body system work.” Imaging studies completely neglect physiological issues.
And yet there are innumerable physiological conditions that can account for GI problems and distress. The reliance on imaging studies is a huge failing to patients who have ongoing sysmptoms and no diagnosis.
A slow speed intestinal system alone can account for severe nausea, pain and vomiting that you are experiencing. Pseudo-obstruction means that the intestine is underpowered and not moving digested food material along as it should. Pseudo-obstruction is equivalent to mechanical obstruction. Make no mistake. But pseudo-obstruction and functional motility disorders still do not capture the attention of physicians as they should. Personally, I think it has to do with the fact that pseudo-obstruction and motility disorders do not have a diagnostic basis in imaging studies or endoscopy procedures (which physicians favor as they are easy to order and generate revenue). Adding that functional disorders are challenging to treat and take time and attention and patient education and counseling, which does not fit well with a medical model that only allows for 15 minute appointments.
The truth is that if you and jake are experiencing functional dysmotility (which I would guesstimate that you both are), there is not one-size-fits-all fix. It will largely be a bit of trial and error on your part. Trying the suggestions that I have imparted. A bit of this and a bit of that. Recognizing that how your digestive system functioned before may not be how your digestive system functions now. Adapting and adjusting will be ongoing. Learning what foods work for you and which give you distress. Portion sizes. Hydration. Identifying a daily bowel management program (Miralax or MofM or supplemental magnesium or cod liver oil) that works for you, and keeping to it daily - even when symptoms dissipate. Recognizing that some days will find your digestive system irritated and angry for no particular reason. But isn’t that true of everyone, to a degree?
Physicians like to treat conditions that have readily available fixes and cures. Physicians shy away and become less engaged with chronic conditions. Which is a sad truism.
Do not be afraid to reach out, as your do here, and learn from others who are in similar circumstances or dealing with similar problems. There is much to be said for the model of people helping people. There is much that medical science does not know. There remains much of how the human body works that remains unknown and not of the provision of current medical care.
Honestly. I remain under-impressed with what medical care has to offer.
When you look at it . . . A appointment with a physician often ends with a prescript
ion pill or medication. Most prescript
ions have their own side effects and secondary miseries.
If you have access to an integrative physician, give it a try. Integrative medicine takes a more wholistic view of the total person and merges both conventional medicine with holistic/natural medicine.
A small bowel follow-through study would give you and your physicians information on HOW your small intestine is percolating and moving along. A small bowel follow-through study would give you information on the functionality of your intestinal tract as opposed to structural-anatomical information of a CT or MRI.
There is an important distinction between the physiology of the body (how the organs and body systems work) and the anatomy of the body (physical structure).
I suspect both of you have more functional issues of the intestinal system and less acute physical/structural issues.
And, yes, Jake . . . I sense chemotherapy has left you with neuropathy findings that are manifesting both an underpowered and slowed and interrupupted intestinal tract as well as annoying neuropathic abdominal pain.
I am glad that you found each other on this forum and can commiserate. It can be a lonely place when expected healing or recovery does not happen as expected or hoped for.
Pituitary failure, wide-spread endocrine dysfunction
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)
Post Edited ((Seashell)) : 1/29/2019 12:20:29 PM (GMT-7)