@mirowpl - Thanks! I'm sorry the Stelara hasn't worked completely, but partially is better than not at all. Similar with me and Entyvio: I think it is working but only partly. I should try and find out what my last couple of faecal calprotectin results were. It's been off the charts high in the past, but no idea what it's doing now - that reminds me though: I'm due for another faecal calprotectin test, which I will do next week.
Good luck with treating the latent tuberculosis too. That's not something you want hanging around.
@Gumby - Good to see you! It's been a long time. I've noticed you rarely post here anymore and, reading your reasons for it, I don't blame you. I don't think about
my Crohn's nearly as much as I used to. It's been pretty stable since surgery; nothing really changes. The miserable bowel symptoms were outweighed by my eye issues and umpteen trips to the eye casualty. Every opthalmologist I've seen has linked the uveitis to the Crohn's. Nothing would make me happier than if the uveitis disappeared, but it's turned chronic and I don't know if it will ever go away or not. I mean, Crohn's can go into remission, so I'm trying to keep the faith that my uveitis can too.....
At the risk of asking a horribly obvious question, have you tried Questran for your IBS?
Apparently there was some dilation behind my anastomosis, which is my GI thought I had a stricture. Sadly I was so braindead the morning I saw my GI, I didn't think to ask why he knew that but not how long the stricture was. I'll ask the pissy IBD nurse but not straight away. Can't face emailing her at the moment tbh.
Brexit *is* terrifying to anyone who follows it closely. I've actually been trying to follow it less recently, because there is nothing I can do about
any of it: only ensure that I have an escape route in the form of an Irish passport.
Oddly your democracy is probably more sound than ours. Trump hasn't been able to shut down the Mueller investigation, whereas our PM blocked an investigation into Aaron Banks (Brexit donor with shady Russian links) and the police dropped their Brexit inquiry without barely a pipsqueak. The stench of corruption hangs all over Brexit but nothing is being done about
it. I have never felt so bleak about
my own country. The windfall does nothing to change that - yes, I was lucky but I read enough terrible stories to know that if I'd been someone else I could be seriously suffering right now. Through no fault of my own.
Sorry! Never mention Brexit to me as I'm liable to go off on rant mode. I'll shut up now >.>
Anyway, I am glad you are Crohn's-free, if not IBS-free. It does suck and I hope you can find something which makes it better.
Dx Crohn's in June 2000. (Yay )
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)