Gumby... think that is a great idea, to add in the miralax. Either that or MOM, I have had better luck with MOM once a day after lunch than I did with miralax after lunch. My GI is OK with me being on MOM but no more than once a day.
Just a quick update on my end... saw my primary GI today. Told them even without constipation, still having issues. They do believe it is scar tissue and/or adhesions causing these issues. That being said, she is starting me on hyoscyamine, which dissolves under the tongue. It is an anti-spasmatic for the intestinal tract. She is hoping that this will help replace the Nucynta I am on, and I am hopeful to. It would be nice to not take narcotics anymore.
I will keep you posted on my visit with Dr. Rubin. I am excited for it, as he may be able to look at things from another place. I am lightyears ahead of where I was in January, as I am now on 15 MG of pred and going to be off in 2 weeks (The beginning of January, I was on the equivalent of 100 MG of Pred in IV form, for a week in the hospital before they could wean me down... it took that long to calm my disease down). 20 mg is that usual "point of no return" for me. If I go below it and flare up, then I know nothing else is working. Being that I have been on 15 without flaring for two weeks, I am very hopeful that at least my Crohn's is managed now. Constipation also seems to be better, so now if we can figure out how to help the adhesions/scar tissue issues, I will be so much better than I have been the last couple years.
Post Edited (JakeB) : 3/6/2019 3:50:44 PM (GMT-7)