Gumby and Susie: The appointment with the different PA went well. She was the one I saw in the hospital right after I got admitted, and she is a little older/more experienced. I need someone like that on my case. She didn't question my use of the Nucynta, which already is am improvement! Again, I think that NP is around my age (30) so she is inexperienced and a bit biased against opioids probably due to the manufactured "crisis". It should have never been an issue because I do have a pain management doctor who is managing the pain issues.... so I don't know why she always had to make me feel bad about
She thinks that I have some IBS interfering, which could really be the case. I have anxiety and depression, partly due to the issues in this past year, I am sure. I have always been high strung though, so this could have been an ongoing issue. I don't doubt if that is part of the reason I am having some constipation issues (IBS-C, I think?). Since my last surgery, the constipation thing has been a big issue... and even without the nucynta or any opioid for that matter, I had that issue. The thing is that last fall when I wasn't on anything, I was always exhausted because of internal intestinal pain, outside of the constipation issues. I was talking with my wife about
this subject... I always have some sort of pain I am dealing with at all times, but then I do end up constipating which causes additional pain. The nucynta is to treat that ongoing pain, which I still don't know what it is. Though the PA and I agree it could be scar tissue or adhesions due to my three surgeries. I bet that doesn't help the motility, either.
I have found success in senna-s before bed and MOM around lunchtime, if needed. That has seemingly kept me pretty "regular", though things are still sluggish. Not sure if that will every be fixed.
The thing with me, I think there is a lot of things going on that are complicating things. It is hard to sort everything out, because of it all. My Crohn's is still a bit active, which is an issue too. I am hoping that the entyvio kicks in soon. They upped my 6-MP to 75mg two weeks ago, and my next infusion of entyvio is next week.
All I can tell you is this... I may be somewhat dependent on the Nucynta, but it has allowed me to work basically full time again, when I wasn't able to do it before due to my daily pain. I work part time at a non-profit, and have been working to start up my own photography/videography business to replace that eventually. I need to work for myself to allow for the flexibility to handle my disease. If taking an opioid can allow me to do everything without dealing with the exhaustion of pain, I will continue to take it and ask for it. Though I really wish to find out where this pain is coming from, but I am guessing without a scope we won't know for sure....
Post Edited (JakeB) : 5/5/2019 9:23:53 AM (GMT-6)