Uveitis is brutal. You haven't mentioned it coming back and I hope it never does. But IBD is one of the disorders it is linked to and it can become chronic. You don't want to be on steroid eye drops long term. In less than 2 years they have given me 2 cataracts in both eyes and my vision is getting seriously cloudy. I'm now looking for an uveitis specialist, one who knows how to treat uveitis without steroids. There is a list of international uveitis specialists - if ever you need one, I can give you the link.
As for relative medicine risks, steroids are by far and away the most dangerous. None of the other meds I worry about
, as the risk of serious side-effects are not only very low, your bloods are routinely monitored. If any liver, kidney, blood cell, etc. anomalies develop, the blood tests will pick up on them. It is not like it is perfectly safe living with untreated inflammation either. Colitis will eventually raise the risk of colon cancer and the longer you leave it, the higher the risk grows. But before that happens, untreated inflammation leads to irreversible scar tissue causing stricturing or a 'leadpipe' colon, or to fistulas. Plus, anecdotally, severe IBD never seems to confine itself to just the guts: it affects your joints, skin, bones, eyes, etc. I never had a thing wrong with me before I got Crohn's - 19 years on, now I have everything wrong with me. (I do have to add, I think I have been an unfortunately unlucky case - milder cases can escape relatively unscathed.)
Anyway, I have been on 6MP for three years. (6MP is azathioprine's sister drug). Have also been on azathioprine (Imuran is the brand name for azathioprine) in the past. Nausea can be a common side-effect to begin with, but for the vast majority it wears off after a week or so. If you're worried about
nausea, ask to start on the lowest possible dose and titrate up.
Hopefully Imuran will be enough but if it isn't, do push for a biologic as well. It is actually better to start a biologic while the disease is not super severe. It's more likely to get you into remission and keep you there.
Dx Crohn's in June 2000. (Yay )
Tried: 5-ASAs, azathioprine, 6MP, Remicade, methotrexate, Humira, diets.
1st surgery 20/2/13 - subtotal colectomy with end ileostomy.
2nd surgery 10/7/15 - ileorectal anastomosis. Stoma reversed and ileum connected to the rectum.
Current status: Chronic flare. Do I have any other kind?
Current meds: 50mg 6MP; Entyvio (started 3/11/16)