Posted 9/19/2019 8:53 PM (GMT -6)
I'm really sorry to hear about your son.
How big is he (weight)? How much prednisone has he been taking, and for how long? When did he start it?
Where is his Crohn's disease located and how severe was it found to be? Did they do a colonoscopy? An MRI? Both?
Humira hopefully should start to kick in soon. Maybe don't taper off the steroids until the Humira has more time to work. Tapering too soon could be part of the cause of his worsening symptoms.
As for what to do in the meantime, what diets have you had him try? He should probably eat a fairly bland diet, like white rice, white potatoes, chicken or turkey without skin, bananas, peanut butter, applesauce, and maybe supplementary drinks like Boost or Ensure. Diets aren't proven to treat the disease directly, but they may help with symptoms.