Posted 10/11/2019 4:11 PM (GMT -6)
Diagnosed 2015 with Crohn's after getting a flareup after taking Otezla(drug from hell) for plaque psoriasis. Used Humira 1.5 -2 yrs...stopped working...went on Stelara....effective for 1st year and a half....last 8mths have been having more low flares with several trips to ER. Recent breast reconstruction/ lumpectomy had to stop Stelara late August when last dose due because of surgery.
Have had three trips to ER in last three weeks...BUT even with Crohns flaring realize how bad I felt ( fatigued, run down) while taking Stelara....and how much clearer and better (other than the flateups) I've felt. My GI dr is a drug pusher and isn't interested in how I feel....slapped my hands like a child for not taking last dose...even though my oncologist and surgeon advised I had to for safety, healing issues, infection.
Anyone have any suggestions? I really really don't want to go back on Stelara....
Any luck out there with Chinese herbs and accupuncture? Any others without that fog, fatigued feeling?
I m feeling distressed.
58yrs fem; have used Otezla, Humira, Stelara, on Budesonide, medrol, zofran for flareup...diagnosed 2015 Crohn's/ IBS...