Posted 10/16/2019 10:38 AM (GMT -6)
amz-- Welcome to the forum. I'm sorry you're going through this. I can "hear" your stress.
I can relate to the brain fog, inability to concentrate and having this terrible disease at a young age. Your post resonated with me as I was 16 when my symptoms first appeared. 30 years later...... IBD is not just a disease of the gut...it affects the brain, your confidence, mental health, friendships, employment, skin etc etc.
Do you have parental and school support? A guidance counselor? At the time I made use of the schools mandate to provide extra help, extra time to complete exams etc. If your parent could contact the school and provide a doctors letter they will be able to accommodate you. My teachers also came to my home when I was in and out of hospital.
The good news is that you will get through this. 2 years ago I literally could not even flip through a magazine. I was so ill. Now I read a book a week. I also downloaded game apps for word searches etc to increase my comprehension as that suffered too.
How long have you been on AZA for? It takes at least 3 months to kick in.
Are you not on any other drugs?
As far as you vitamin deficiency ; you can go to the drug store and get vit D (1000mg/day), zinc, potassium etc. When I feel extremely weak I take b12, drink ensure etc. You can take zofran for nausea or gravol at night.