I wish it was only a matter of surgery that has me anxious about
rejoining the work force. It’s never that easy with crohns. Regardless, I started working. It has turned out to be extremely physically demanding for me especially with my joints being awful & meds & simply not havjbg the stamina. My employer does not know I’m sick. I have no idea how to handle the time off needed for treatments & side effects, but I’ll have too. Going to continue as long as I can but it’s definitely a very taxing situation.
Paul; I’ve pretty much been retired my adult life with only a few years of working
. Too many long term hospitalizations , home care etc to count. It used to really bother me (self esteem, self worth) but since the fistulas that’s changed and I’ve more or less accepted my employment circumstances. At least I’ve got degrees so I’m proud of myself for that.
I do love telling new people I meet that I’m retired though. I say it with a massive smile & watch their shocked faces as I’m not old enough to reach retirement age
. It’s rather fun.
Thank you both for the wishes. I’ll look for more suitable employment although I have no idea what that would be.
UC/Crohns - tested positive for MAP antibodies & mycobacterium
chronic fistulas. Failed setons...it was pure torture.
started Stelara May 24, 2017. Remission since! 150mg imuran
30 yrs IBD--started as parasites, then IBS, UC, PG, CD
Permanent port insertion 2019.
both parents had IBD. My advice: be selfless don't procreate with CD.
IVIG on occasion.