RVF sufferer here. I had recto-vaginal fistulas prior to and only developed an RVF after a successful (finally!) surgery to heal a larger fistula.
RVFs are notoriously hard to deal with, although I feel fortunate as I am currently diverted (ileostomy) so I only have to deal with occasional discharge. I participated in the study linked by exit 4 above but, sadly, I haven't had healing. There are new trials with stem cells in the works and I am planning to go that route vs. a traditional surgery (Martius flap or other).
I echo the recommendation to find a trusted CRS who really knows fistulas. If you go the surgical route, they likely will partner with a urogynecological surgeon but focus on ensuring the rest of your disease is as stable as can be (as surgery is really only an option when inflammation is under control). Like you, I developed a reaction to Remicade, and then went the Cimzia and Humira routes. I'm now on Stelara (among other things) and, while the RVF hasn't healed, it hasn't worsened and I haven't developed anything new.
Wishing you the best!
Diagnosed with Crohn's: 2002
Past Meds: Pentasa, Remicade, Cimzia, Asacol, Cipro, Flagyl, Lialda, Humira
Current Meds: Stelara (4 weeks) , Azathioprine (150mg/day)
Surgeries: Fistulotomies & Seton Placements (2011, 2013); Advancement Flap (2013); Temp Loop Ileostomy (2016); Fistula Repair w/ Gracilis (2016); Fistula Repair (2016); Stem Cell Treatment (2018)
Post Edited (DCCrohns) : 11/4/2019 7:13:59 PM (GMT-7)