Posted 3/20/2020 8:20 AM (GMT -6)
Thank you, ambling! Yes, I realize that the increased occurrence of diarrhea was caused by the small bowel resection(s). The last one was 18 months ago. The first 6-8 months afterwards were hell, until my gastro Rx'd the Questran. The problem with that is timing intake with meals, supplements and other meds, as it blocks absorption.
The radiation colitis occurred a year before the SBR and was Dx'd midway between that treatment and the surgery. Basically I've had to discover on my own what I can and can't eat. Thank goodness for Dr Google, as my doctors have been little to no help.
Sclerosing mesenteritis is a rare diagnosis, so I've sought help from Crohn's/UC groups. There is a small SM group on FB but most there have been Dx'd from CT or biopsy and are treated with steroids. My case seems to be significantly different from most others.
Most treatments commonly used for Crohn's and UC do not apply here, but the dietary restrictions are shockingly similar. And I get fed up with those who recommend fiber or vegan, as that would probably be the worst things I could do. Getting tired of grilled chicken breast with white rice, and hoping maybe some others could make some suggestions. Again, so I don't feel so alone in this.