Posted 5/12/2020 3:45 PM (GMT -6)
It's 2 months since I had my first Entyvio fusion. I've had 3 so far and will have my 4th in mid June. With the first 2 fusions, I was okay, outside of a short fever and nasal drip. Since the 3rd fusion I really haven't been feeling well, bowel symptoms are worse, the nasal drip continues from morning to night unless (I take an allergy pill) and nausea and weight loss. I seen the GI today and he wants me to continue to keep trying to take questran to slow the diarrhea down. He offers no other bridge therapy until entyvio kicks in? I don't know, sometimes I feel so misunderstood. I feel he isn't listening when I tell him how I'm feeling? Today he guilted me, I think quite unintentionally by saying that by my refusal to go on Entyvio sooner, I missed out on many opportunities? That kind of made me feel bad and to blame, that I am in the place that I am because I didn't go on this med sooner, so brought it on myself.? Maybe that is what I need harsh words to try harder?