Posted 5/13/2020 3:38 PM (GMT -6)
Rattytatty, I'm 50 years old and was diagnosed at age 9 in 1979. Had a small bowel resection in 1983. Took Sulfazalazine for 2 years and then didn't tell my parents that I stopped taking it for over a year. I admitted this to my Gastro Dr. at the time and, still being in remission, he said, you're done with meds. I remained in remission for over 25 years. The Crohn's came back strong at age 39 at the beginning of my divorce. 2 years later I started Remicade which worked for about 1.5 yrs, then stopped working (no antibodies though). I also had some nasty side effects like high blood pressure which went away a few months after I stopped taking it.
I am not in remission, but choose not to take any meds. My disease is mild to moderate. I've had 3 scopes in the past 10 years, most recently in March of this year. I do have further (now significant) narrowing at the site of my anastomosis. That's the usual place the narrowing occurs. I'm considering meds again but knowing me will not take them. So I'm looking at a resection in the new few years. If I made it over 40 years without another resection, I think I did well. Of course, none of us are the other person and react differently with this disease and with the meds. Most on this forum are huge proponents of meds. There seems to be a lot of threads that mention damage being done on a microscopic level. I'm sure that's true and I respect their views. I've done well with the odds and happy with my choices. I hope you find peace and healing in whatever direction you take.