Posted 8/24/2020 9:32 PM (GMT -7)
That would be nice if it was just my usual, kinda sad when we are hoping it's just our Crohn's making things wacky. But yes Humira was I believe the first one I tried. I'm not sure if it was really working but gave me the most horrible migraines. Then I did Cimzia and didn't think it was working so he put me on Remicade, and boy that was nice for the years it worked. Eventually it stopped working and I had antibodies a few years ago and we moved on to Entyvio and it worked GREAT. Only on my third infusion on my way to the car my lip swelled up and I broke out in hives. So off of that and onto Stelara, which was another "eh" not so sure it did much. I ended up developing really bad knee pain, to the point where I couldn't walk up the stairs without just dragging that leg. So he decided to try Remicade again, which I was super nervous about. That was in January and of course I'm not doing well. I'm not sure what our next option is. I've done Methotrexate, which I don't think does much anymore. Both Imuran and 6mp gave me pancreatits, so they are tabled. I feel bad for the GI doc, I know he feels like he's running out of options for me.