Sorry, what is TIES in relation to Crohn's? Google is letting me down here.... >.>
@Clo - I've got my rectum and about
half my sigmoid colon left - the rest of my colon has gone. My small bowel is connected to my rectum. I didn't have fistulising disease, so I took a chance on a reversal but it never really worked well - from the start I had severe urgency, tenesmus and butt burn, which made toilet trips a misery. Still, I managed for a few years, but started getting more and more sick of it. And now I've got fun new upper GI issues to add to the mix! Have always had occasional
issues with heartburn and nausea, but that's been slowly getting worse too. Then last week was REALLY bad - one night I got no sleep at all for nausea and chest pain. It's been better the last two nights, but I'm still scared as to what it might be. Probably just severe indigestion, but why now, when my diet hasn't changed...
I am sorry about
your kidneys. That sounds scary and I hope they can find a solution to it. Your hospital stay sounded grim as well
I get that the nurses are scared of getting Covid, but there must surely be some middle ground between protecting the staff and treating the patient like they have the Black Death. I'm not sure what UK hospitals are like, but my mum's friend recently had an operation for lung cancer. She wasn't allowed visitors, but I don't think the nurses avoided her like the... plague. She made a point of saying how nice they were all and how well they treated her, so there must have been some communication there.
Anyway, when I have surgery I'll be getting my butt sewn up. It's a big step but I know I'll never try for a reversal again. And last time I had an ileostomy, I actually ended up passing mucus several times a day - so just keeping an disused rectum in there indefinitely isn't really an option.
Do you mind if I ask why you've still got your anus? Are you hoping for a reversal one day?
@UB - Urgh, that sounds horrific. I honestly thought Canada would treat its disabled people better than that: it sounds no better than the UK. I'm too tired go into details right now, but my disability benefit is up for review. Which means going through the whole assessment again. I've at least done the first part - filled in the form - but now I'm waiting on the second and worse part: an interview. I'm just so sick and tired of being assessed every 1-2 years. Even if you get awarded disability for, say, 2 years, they can cut it short and haul you up for another assessment before the two years is up. (Yes, that happened to me.)
I've thought about
trying to find work I can do from home, but I just feel like a rabbit trapped in headlights or a lab rat stuck in a cage - helpless. Just don't even know where to begin after so long out of work...
Anyway, sorry, I'm getting a bit depressing. Just very tired at the moment :-/
I'm sorry about
your dog, UB. In time maybe you'll be able to consider getting another dog, but 15 years is a long time. I'm sure you must still miss her incredibly.
Glad to hear you had your shots. I had a horrendous night after the first dose - fever, chills, pain, etc. But I was fine 24 hours later, and had no reaction at all to the second dose. Not heard anything about
boosters, but I think there's a fairly decent chance I had Covid in early summer. Well, it was that or the cold from Hell. Only thing which makes me lean towards Covid is that I lost my sense of taste and smell for a week. It fortunately came back, but I've never had that with a cold before.