Posted 7/27/2021 7:37 PM (GMT -7)
Hello not been around in a long time here, been through alot of surgery.
I had surgery in December 2019 to remove a stricture in an old anastomosis site where my colon and small bowel were resected many years ago. The colo rectal surgeon did this laparoscopically which he should not have...
Instead of doing what we agreed upon he ended up removing a 2 foot piece of small bowel because he found other areas. Then he put this piece back in me. So I left this surgery with two anastamosis or a double resection. One is large bowel to small, one is small bowel to small bowel.
In feb 2020 I started having infection. I had an anastomosis leak. Eventually I had a fistula, and several abscesses. I was in the hospital every month for a week in 2020. Eventually I left with a drain bad for the abcesses, and this kept me out of the hospital.
In Jan 2021 I had another surgery to remove all this infection, abcesses, fistula, and the drain bag. Bascially the new surgeon I found repeated the same surgery as before only removing a few inches of small bowel, and a few inches of the large bowel to small bowel resection. Another double resection. This was successful, and all the infection is gone. No bags, tubes, abcesses, fistula or anything.
Now... I am having a different problem I have never faced before. First I have to be on constant antibiotics. Cefdinir, and flagyl. This keeps gas down. If gas moves through this 2 foot piece of intestines that has been resected on both sides colon to small bowel, and small bowel to small bowel then the pain and uncomfortableness of it all is just unberable. Antibiotics keep it ok.
I am also going to the hospital with what they are saying is transient Scar tissue obstruction. The doctors are telling me that it is from scar tissue. These obstructions pass, but I spend a week in the hospital not eating and on liquids. On a good note my weight is up I have 30 plus pounds of extra weight on me and it is ok to do liquids when needed.
I had a colonoscopy last month. No active disease, everything wide open. The GI went through the 2 resections with a pediatric scope and said it looks "beautiful". I had an upper g.i. in the hospital last week with small bowel no obstruction wide open. Keep in mind when these tests are done I have had liquids for 3-4 days and nothing solid. I am going for an MRI next week with contrast as my final test.
I am thinking that this part of my small intestines that was removed by the surgeon is just not taking in my body. It is just not healing. It is not going to do well enough to become strong enough to be able to move stuff through it.
I have contacted my surgeon again the one who did the second surgery above. I was going to ask about just removing this 2 foot piece of small bowel, and hooking my small bowel to colon where I would just have ONE SINGLE resection. Just one Anastomosis instead of two. I am thinking this would give me a better chance of everything healing together better. Right now if I eat very much solid food I can feel that obstruction pain those waves depending on how much I eat which again is just very little. It takes about 10 hours or so before this happens, because it has to move all the way through most of my small bowel before I have trouble. Liquids seem fine, but I don't want to survive on liquids. I don't want to live constantly worried about obstruction.
I do have alot of small bowel left so that is not a problem. If this 2 foot piece were removed I would still be left with plenty of small bowel.
Just wondering what you guys think, and if another surgery would be worth a shot at fixing this?