what is going on with me?

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Regular Member

Date Joined Apr 2007
Total Posts : 134
   Posted 8/15/2007 6:53 PM (GMT -7)   
I'm not sure if this is Crohn's related, but I'm curious to know if anyone has had these symptoms before.
Roughly a month ago I was diagnosed with the parvo virus, but I don't htink it can cause this sort of pain..also had my Imuran increased to 175 and I do know that my white blood cell count is the lowest they will let it go.
Every three days or so I get extreme joint pain all over my body (especially in my jaw) and headaches. My bones also hurt, and my skin is hot to the touch. It goes away,then comes back. Seems to return after I spend time in the sun.
I urinate frequently, but not much comes out.
The pain in my calves went away, but at times it was so severe that I couldn't walk more than 10 steps without needing a break.
What the heck is going on??

Regular Member

Date Joined Jul 2007
Total Posts : 222
   Posted 8/15/2007 9:43 PM (GMT -7)   
I get achey joints and muscles that move from place to place. Example it has settled in my knees right now, but yesterday one of my toes hurt too, my elbow hurt one day, ect. I don't have the other symptoms. My joint pain starts when I start to flare... Hope that you can find some answers and relief. Have you called and asked your dr?
Living with Crohns for 1 year. I have a wonderful husband and two beautiful little girls.
One blessing that came with my Crohns: I thank God for each day that I can get out of bed and take care of my girls and my home.

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 8/16/2007 6:30 AM (GMT -7)   

Cbk, So sorry you are hurting. You might want to tell your GI and possibly see a Rheumatologist. Maybe there is something else going on with your joints.

I have terrible jaw pain and I found out I have Fibromylgia and arthritis in my back. I thought it was all CD joint pain but it was something else.

it may also be your meds so your GI might want to know.

Good luck and I hope you feel better soon!


Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On Azathioprine (generic Imuran), Pentasa, & ENTOCORT

Diagnosed w/  Fibromyalgia May 2007 also on Cyclobenzaprine (generic of Flexeril)

Also taking Multivitamins, B Vitamis, Biotin, and Extra Folic Acid. (might add more when I do more research)

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