I think I'm getting the run around, but let me start off...
For the last year and a half, I had been seeing a gastro for my Crohn's. Nice enough guy, but he wouldn't ever prescribe me anything as far as treatment. He'd tell me to hang in there just a little bit longer. Then we'd do a colonoscopy and he'd say there was some inflamation, but we need to wait a bit longer.
He was a newer gastroenterologist, so I just gave up on him. Decided to go with another gastro, one of the highest recommended I could find that specialized on Crohn's cases. I made the appointment to see him on May 2nd. Mind you, this was days after my last colonoscopy with the prior gastro. The earliest he could get me in was July 21st. I figure I'll be fine till then. Come the end of June, I get a letter from the new Gastro, telling me that my appointment has been rescheduled till September 25th. I'm rather ticked, thinking that I've been suffering for a while and end up having to wait almost 4 months for an appointment. But I continue to wait.
Fast forward to this week, wake up tuesday morning in the middle of the night. Vomiting blood, running a fever, and having bloody bowel movements. Thinking this isn't quite right, I go ahead and worry a bit, but go on to work. Leave work about half way through the day and admit myself into the local ER. At first I thought I was just having a flareup. They run a ct scan, find that a large portion of my intestines are inflamed. Want to admit me, but I won't let them. They send me packing with a couple of scripts for 8 days of pred, azulfidine, and lortab. I immediately call my new gastro and try to get them to move up the appointment. They won't budge. I'm told the soonest I can get in is Sept 25, still. Any problems I have, I need to go to the ER each time, regardless of the severity.
Now to my question. Anyone else been in this boat? My old gastro has dismissed me. My new gastro is dismissing me because he can't make time to fit me in any time soon. And I really, really, don't think short term pred and azulfidine is going to help me. Going to the ER is going to get tiring, and I think I need to be on some kind of steady dose of something in order to keep this under control.
Should I just admit myself this weekend and get it over with? I'm afraid to miss work, and I'm guessing that until I get some decent care, I'm up poop's creek without a paddle. This is by far my worst bout of crohn's I've had thus far, and I'm not sure what I should do.
Edit: Let me add a few more things too. The ER doc who saw me said that the condition that my crohn's was in was once of the worst cases he had seen. I've lost 12 pounds of the course of two days. The main reason he wanted to admit me was to send me up to the on-call gastro and talk about
possibly surgery (which really scared me, tbh). I don't know what to do, and I don't want to miss work as I don't have vacation time and I can't swing my bills without it.
Post Edited (jmattick) : 8/15/2007 10:28:12 PM (GMT-6)